Re: Reflux & G tube - \Christy

[Guest guest]

Thanks for haring Wyatt's story. I hope that Abby and Emma also

outgrow thier swallowing difficulties. It makes sense that the

coughing and PD's interfere with the normal development of the

muscles involved.

Gale

> A few people have been talking about reflux lately and I thought

I'd

> just share my experience. Wyatt had refulx. Not so bad he couldn't

> eat at all orally but when he vomitted it was like the exorcist.

> After months and months of ruined receiving blankets and clothes I

> finally wised up and began to carry a box of quart or gallon sized

> ziploc baggies in my diaper bag as well as multiple changes of

> clothing for him and us! He was breastfed and ate every hour and

spit

> back up probably a good half of what he ate. I never thought he'd

> outgrow it but around 18 months to 2 years it stopped unless he was

> sick and coughing VERY hard. He of course was to young to hawk it

up

> and spit it out so if he had to get rid of extra phlegm he threw

up.

> When he started eating cereal and formula (I had to stop

> breastfeeding for nourishment at 8 months old by order of the

doctor

> but got to do it for comfort till he weaned himself the day before

he

> turned one year old) we added LOTS of rice cereal to 30cal

> nutramagean and it was like a thick Mc's shake consistency.

He

> never used a bottle but we had to use a sippy cup w/ a large

opening

> so the formula would get through.

> It does and it will get better little by little the older they

get

> and the more solid food you can get down them. It just takes them

> longer than a " non cf " baby to strenghthen the muscle that keeps

the

> food down because of their coughing.

> If you have babies on formula that need to put on weight you may

> talk to your dietician about doing something like I did w/ a30cal

> nutramagen with rice cereal and there was a little packet of

> flavoring that added extra calories we used too. I forget exactly

why

> nutramagen as it is the most expensive formula out there but I

think

> because it's very close to breastmilk and I mixed it to get maximum

> calories out of it so instead of one scoop formula to one ounce

water

> I used 3 or 4 scoops per ounce of water. I went through a can a day

I

> think so I applied for WIC and had the doctor write a letter of

> medical necessity and I believe if I'm correct I got all the

formula

> I needed for the month free through WIC (CASES OF IT!!) When Wyatt

> stopped using formula I actually returned a couple of cases I had

> left over.

> Anyways, just a thought. Maybe that will help someone! Christy

mom

> of Wyatt 7wcf and Hunter 2.5 wocf