Guest guest Posted November 23, 2002 Report Share Posted November 23, 2002 Quite a large percentage of us with cystic fibrosis do have alph-1 -antitrypsin deficiency; I do not, but I have friends who do. Your daugh ter sounds to have had really good care--must have a really good fa mily, too. There is so much to learn, and we all learn some of it in dif ferent ways. Sometimes I think of our list, which is terrific, as " confuse- a-parent because we have so many who are learning and sharing so much that it hits the parents of newly diagnosed kids with a real bang. But we try really hard here to be supportive, informative and sharing, caring and even sometimes, humorous. Our list is as good as it is be cause so many wonderful people like you and your family find us. Thank you so much for diving right in. Love to you and to yours, n Rojas, wcf, mom of 3 adults, youngest with cystic fibrosis, too; I am widowed, NOT due to cystic fibrosis; the " kids " are grown and are now 41, 39 and 36, wcf. We won't even discuss my age except that it is not yet three digits Quote Link to comment Share on other sites More sharing options...
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