To Fay and

[Guest guest]

It sounds like you are getting him off to a healthy start. I remember

once having heard of a diet that would induce ketosis in most people -

very high fat - but helps forms of epilepsy. Have you heard of this?

take

care, Fay

Fay, the ketogenic diet is the epilepsy treatment you are thinking of.

While it can be very effective, it also can have a lot of nasty side

effects and is not a " healthy " diet. That is why I am here, as I am

hoping that SCD will help and avoid going on the keto. I posted

about the SCD on the infantilespasms web group so that is why is

here. , given you are just starting to feed solids, I would try

following the guidelines for introducing SCD foods and avoid the

illegals - wheat, dairy, starch, soy and sugar. I've been feeding

SCD " Stage 1 " for a few days now with the exception of his bottle and

his poops have turned a lovely light green (no, I won't post pictures!),

but I believe this means that the " die off " phase is starting.

I met with the keto nurse yesterday. will likely start the Keto in

April, so I have 2 months to give SCD a try. The protocol they use for

starting the diet is to use RCF (Ross Carbohydrate Free) formula

(soy-based), microlipids and polycose for 2-3 months via g-tube - no

oral feeds. I'm not too keen on this as eats/drinks orally but she

said that they've had the most success with this protocol. After 2-3

months, assuming he is stable and the diet is working for him, we could

start with oral keto meals (about 80% fat, 10% protien, 10% carbs). In

the meantime, I need to fatten him up as he has dropped off the weight

chart, so I'm going to do 50% carbs, 30% fat and 20% protein with

SCD-legal foods.

Wish me luck,

Sharon