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Hi ,

welcome to the list! Is your son on enzymes already? And have they done a

throat swab on him to find out what kind of bacteria he harbours in his

airways? Regardless whether he has CF or not those steps could be helpful to

solve some of his problems. I hope that you'll get a dx soon and your son

will receive the correct treatments. There are other preemies on this list

too and some who are also in limbo with the diagnosis.

Peace

Torsten, dad of Fiona 5wcf

e-mail: torstenkrafft@...

new here

> hi

> they have not yet done the test on my son to see if he has cf or not

> but they do want to do it seeing that he has alot of the signs of

> having it. he has the loose stools all the time failure to gain

> weight the breathing troubles he has colds all the time or lungs

> infections in and out of the hospital he is 11 months old but seeing

> that he was born 11 weeks early he should only be 9 months old. he

> has a g-tube he got it in august and has stayed at 14 pounds or

> around there since then. he is on 24 cal an ounce formula and that

> isnt helping with weight issues either he has had about 12 surgeries

> already and i just dont want him to have any more it at all possible

> he also has cp

> there was a quick introduction

> heather

>

>

>

> -------------------------------------------

> The opinions and information exchanged on this list should IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

>

> ------------------------------------

>

>

>

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  • 3 years later...

I am new to this group. I have a 5 yr old asd son, who is on a very

restricted diet. I need suggestions for breakfasts and lunches for a

kid that can't eat gluten, casein, soy, yeast, corn, peanuts, rice, all

sugars except stevia, and the only fruit he eats is pears, and a little

yellow apple. Any suggestions are very much appreciated. I am

especially desperate for a cereal idea- he REALLY wants to have cereal,

something cold, and crunchy is preferred. Any ideas for one that I can

buy, or make myself?

Thank-you.

Amber.

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