OPRAH CLARIFICATION. Please read.

[Guest guest]

Hi, It's Lenora.

I'm half-involved with this, so I'll step in.

First, was Louise's message supposed to be posted to the whole list?

From what I read, it looked like a " private " message from Louise to

. Please clarify for me.

Okay, here's the thing. A few weeks ago, we were working on

contacting Oprah about dealing with children with cf. It was CF

Awareness Week, and the Awareness Campaign is what Louise was

referring to. We were sending her an awareness t-shirt and rose

ribbon and hoping to get a show during CF Awareness Week next year.

We were all a bit offended because Oprah was doing a show on new moms

and how stressed they were and how difficult their lives were and we

were feeling slightly less than sympathetic.

So we all wrote our letters only to find out that printed letters in

a packet would not be accepted by the show, so many people took their

letters and rewrote and pasted in the form on the website which

posted for us, and Louise was mentioning that hers wouldn't go

through.

Tammy read the message and, I think, didn't realize a group was

already planning to try to get Oprah to do a show, and she got

excited because she could possibly help.

So really we all want the same thing. Exposure and awareness.

If Tammy is still interested in delivering letters to Oprah, I think

she will be glad to take letters from all over the country, not the

IN area. In fact, I think to make a show, that is imperative. So,

rather than being our messenger, Tammy may do it instead.

I also think photos would help.

My main concern is that our emphasis is positive. We are a little

peeved that moms of perfectly healthy children are feeling sorry for

themselves, but we are not necessarily the worst off people either.

My feeling is that we should be showing others the extraordinary

beauty in motherhood, regardless of the situation. To make people

realize how lucky they are, to let them reach out and help others who

need their help, to teach them tolerance and the true meaning of

diversity...

So, taking it from here, where are we?

-Lenora

National Cystic Fibrosis Awareness Committee

(NCFAC)

http://www.cfawareness.org

--

http://www.lenoradegen.com

CYSTIC FIBROSIS AWARENESS WEEK is OCTOBER 13 - 19, 2002!

[Guest guest]

Leona - very well said...we want to be seen as positive not bitter, anger

women who think that mothers of healthy kids are whiners - hey wait, we kind

of do LOL......but I agree.

Rosemary in New York with 3 children with CF - they are 12, 9.11, 6...I

coined the phrase " BREATHE DAMMIT " ; and now we have a dog named - are you

ready for this - TOBI after their medication!