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In a message dated 12/24/2002 4:11:08 PM Central Standard Time,

j.larocque@... writes:

> ---Hi Deb,

> The symptoms you are describing are very familiar. I'll give you a

> quick history. My daughter 10 w/cf was on Bactrim for

> Stenotropomonis (spelling)? Her then CF clinic doc decided to leave

> her on Bactrim for a base anitbiotic. We kept complaining that she

> had no appetite, very tired and stomach problems---The doc didn't

> listen to us. My daughter wasn't gaining any weight and the doc kept

> putting her on I.V. antibiotics. Anyway long story short--we

> switched doctors in the mean time for a lot of reasons and he

> immediately took her of Bactrim. She has only had to go on it once

> since for about 2 weeks for the same germ and we again noticed the

> same symptoms almost immediately but got through because it was only

> for 2 weeks to work on the bug. The new doc said he gave her high

> dose for short period because of all the side effects and that

> Bactrim was known for the symptoms we described. My advice to you is

> to be sure to relay all symptoms to the doc and make sure he/she

> listens to you as you know your child better than anyone. Also since

> switching doc's my daughter has gone from under 25th percentile to

> over 50 percentile and her PFT's have increased dramatically.

> I blame most of the problem of her weight etc. on Bactrim and a doc

> that wouldn't listen.

> Good Luck

> J.

I think I will send the nurse practitioner your letter if you don't mind to

prove to her that others have had these problems too. Deb A

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In a message dated 12/24/2002 4:11:08 PM Central Standard Time,

j.larocque@... writes:

> ---Hi Deb,

> The symptoms you are describing are very familiar. I'll give you a

> quick history. My daughter 10 w/cf was on Bactrim for

> Stenotropomonis (spelling)? Her then CF clinic doc decided to leave

> her on Bactrim for a base anitbiotic. We kept complaining that she

> had no appetite, very tired and stomach problems---The doc didn't

> listen to us. My daughter wasn't gaining any weight and the doc kept

> putting her on I.V. antibiotics. Anyway long story short--we

> switched doctors in the mean time for a lot of reasons and he

> immediately took her of Bactrim. She has only had to go on it once

> since for about 2 weeks for the same germ and we again noticed the

> same symptoms almost immediately but got through because it was only

> for 2 weeks to work on the bug. The new doc said he gave her high

> dose for short period because of all the side effects and that

> Bactrim was known for the symptoms we described. My advice to you is

> to be sure to relay all symptoms to the doc and make sure he/she

> listens to you as you know your child better than anyone. Also since

> switching doc's my daughter has gone from under 25th percentile to

> over 50 percentile and her PFT's have increased dramatically.

> I blame most of the problem of her weight etc. on Bactrim and a doc

> that wouldn't listen.

> Good Luck

> J.

I think I will send the nurse practitioner your letter if you don't mind to

prove to her that others have had these problems too. Deb A

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In a message dated 12/24/2002 4:11:08 PM Central Standard Time,

j.larocque@... writes:

> ---Hi Deb,

> The symptoms you are describing are very familiar. I'll give you a

> quick history. My daughter 10 w/cf was on Bactrim for

> Stenotropomonis (spelling)? Her then CF clinic doc decided to leave

> her on Bactrim for a base anitbiotic. We kept complaining that she

> had no appetite, very tired and stomach problems---The doc didn't

> listen to us. My daughter wasn't gaining any weight and the doc kept

> putting her on I.V. antibiotics. Anyway long story short--we

> switched doctors in the mean time for a lot of reasons and he

> immediately took her of Bactrim. She has only had to go on it once

> since for about 2 weeks for the same germ and we again noticed the

> same symptoms almost immediately but got through because it was only

> for 2 weeks to work on the bug. The new doc said he gave her high

> dose for short period because of all the side effects and that

> Bactrim was known for the symptoms we described. My advice to you is

> to be sure to relay all symptoms to the doc and make sure he/she

> listens to you as you know your child better than anyone. Also since

> switching doc's my daughter has gone from under 25th percentile to

> over 50 percentile and her PFT's have increased dramatically.

> I blame most of the problem of her weight etc. on Bactrim and a doc

> that wouldn't listen.

> Good Luck

> J.

I think I will send the nurse practitioner your letter if you don't mind to

prove to her that others have had these problems too. Deb A

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In a message dated 12/26/2002 7:59:30 AM Central Standard Time,

j.larocque@... writes:

> -Hi Deb,

> Sorry I posted almost the same thing twice. The first time I wrote

> back to you I didn't think it went through so I did another reply.

> No, I don't mind if you use my e-mail. Anything that helps!!!

> J.

>

Ok Thanks! Deb A

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