Re: Ambry test/

[Guest guest]

Yes, we had to pay for the test-- I wish I would have

used the Ambry Lab. The babies " poop " problem seems to be

better with the new formula (Neocate) but he seems to

cough more now. He had an episode today where he coughed,

choked and began to turn purple. I'm not sure what is

worse-- the diarrhea 10 times a day or the breathing? When

he " poops " so much he tends to get dehydrated easily and

doesn't gain well, but this extra coughing is not good

either. I am hoping to get some answers on Thursday-- how

much longer for you? My son has never been tested for

allergies (except milk) I was told his symptoms started to

early to be allergies?

> ,

>

> Did you have to pay for the gene testing? I just had Caden's DNA

blood draw done Friday. We did the Ambry Genetics test. It costed me

$325!

>

> His pediatrician done it but I don't think she honestly thought it

was worth doing because of his neg. sweat test. She also said that it

don't mean anything that he has nasal polyps!

> She said that a lot of people get polyps. Yea, if they are older or

have severe allergies. 4 yr olds just don't come up with polyps.

Caden has chronic sinusitis and NO allergies.

>

> Just wanted to let you know that we are also waiting for DNA

results.

>

> Take care,

> Krsystena s

> Ambry test

>

>

> Thank you for the info on the Ambry test. I had a

hard

> time getting any DNA test-- my doctor had this wrinkled,

> old request form from genzyme in his office that had

> probably been there for 2 years from the looks of

it...

> He filled the form out wrong (he signed where I was

> supposed to) so I do not think they do DNA tests

often.

> I was probably lucky to get any test. If I require

further

> testing I will look into the Ambry test. If the test

does

> not show even 1 mutation would you recommend further

> testing?

>

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