PEG & BRANDON, MARY, SHIRLEY and others--AFTER THE SURGERY???

January 1, 2003

Hey all,

Long time no talk to. I have been reading all of the posts...hardly

get a minute to post myself (Jim doesn't get on the computer too

much). Anyways, we have a question for anyone that has had this

surgery...Jim had his pancreas out, along with his appendix,

gallbladder and spleen on August 19, 2002 by Dr. Sutherland in MN.

The pancreatic pain (usually left sided and in his back) is

completely gone. He requires no insulin. The problem he is having

is pain in other places now...primarly on his right side. He was in

the hospital for exactly 3 weeks in MN..when he left, he was doing

quite well...mostly pain at the incision site. That pain has

subsided (pretty much totally gone)...He just has this " other " pain

now that can't seem to be explained. He was switched from Viokase to

Pancrease (enteric coated) and that really settled his stomach alot.

The pain he has is not related to food...it's not as bad as the pain

before the surgery, but it's still pain and still keeps him down and

in bed often. We were curious if anyone else was experincing any

other forms of pain after having this surgery? We read 's

message #37743 and she seems to have alot in common with Jim in this

regards. Jim goes to his Upper GI doctor again this friday, jan.

3rd. He recently had an EGD and UGI last month but both were normal??

How puzzling is this??? Any responses would be most appreciated. I

now emailed Dr. Sutherland to get his input...I'll keep you all

posted on Jim more. Jim really want's to return to work ---his goal

was March...We're crossing our fingers that this will somehow just go

away!

Again, although we haven't posted frequenly, we read the posts

regularly. HAPPY NEW YEAR to all of you and may this new year be

full of new breakthroughs for all sufferers of CP!

Lorrie & Jim

Pittsburgh, PA

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