Nervous about moving and B Cepacia

[Guest guest]

Hello,

I'm very glad I found this chat bc I've never before heard of B

Cepacia. Wy goes to CF Clinic sometime in the next couple of weeks

and I definately have questions for his doc. Thing is, we are

military (US Navy Seabees)and are leaving Hawaii to go back to

California Dec 2nd. In Cali we have to go to LA Children's Hospital.

I loved my Dr there before and the nurses and dietician. They were

great. Problem, Wyatt had this awful cough (he rarely ever coughs).

He'd cough all night long and none of us ever stop. Initially we

tried regular antibiotics for a cold and it helped. Two weeks after

we were done the cough would return. Then they said it was his

sinuses and allergies. We came here and I told my Dr we had a CT scan

done on his sinuses and we found out a week before leaving Cali he

was allergic to Cat Dander so we gave our cat away before moving. He

still had this cough. First thing out of my Doc's mouth was has he

been tested for PA. NO! I never heard the words! So he tested him and

what do you know he has it! After months of trying to get rid of it

we called it a day and he is colonized w/ it now. So now I'm nervous

about going back to the same place that TOTALLY missed this

diagnosis! I have no other choice of where to go, plus, it's

considereed one of the best. So should I talk w/ someone at the LA

Clinic and tell them what happened and my concerns? Should I ask for

a new doctor if his old one is still there? I don't know..

Oh, and as far as the overeating thing... I hear you loud and

clear. My husband and I both have gained weight and I'm currently on

Weight Watchers to lose it. So I have two versions of everthing in

the house!

Christy mom of Wyatt 7wcf and Hunter 2wocf