Guest guest Posted February 24, 2002 Report Share Posted February 24, 2002 I was a passive participant of this group for many months, mainly during the most intense periods of my flare ups. Now that my rosacea and associated phenomena have been brought under control (at least temporarily), I wanted to share my experiences in case they might be of use to others. I am a thirty-nine year old man. First, since rosacea is not clearly understood and incurable, I have come to realize that lending the condition a single name such as " rosacea " could be harmful to treatment. It becomes too easy to label it, seek the conventional (or unconventional!) treatment for it, and stop pondering its many guises and manifestations. But I've seen that it's nowhere near as simple a condition as the single one-word name for it would lead you to believe. In my case, for several years at least I've had mild erythema, with some telengiactasia (one on my cheek to the side of my nose, several on either side of the nose where it attaches to the face just above the lips). My regular physician called the redness to my attention two years ago and offered treatment, which I refused, since he told me it would involve permanently taking antibiotics. A year later, he mentioned it again, and after reading up on rosacea for the first time and realizing its progressive nature, I decided that I probably did have it and should treat it. I am fair skinned and an easy blusher, and thus a prime candidate. My physician's first prescription was for Sulfacet, which was tinted and caused me some embarrassment as a man who looked like he was wearing makeup. When the Sulfact appeared to be causing a reaction on my skin, I consulted with my physician and we switched to Metrogel, which I seemed to tolerate just fine. Trying to be a good patient, I started using sunscreen and moisturizers and wearing a broad-brimmed hat in the sun. Everything went fine for two months, except that I was noticing a lot of small bumps on my forehead (only slightly red, usually). I stopped applying the Metrogel on my forehead since I had had no rosacea symptoms there anyway. But the bumps didn't go away entirely, and seemed to come and go in phases. In October of last year, the area of my face with the erythema (nose and both sides of the nose) suddenly broke out in lots of papules, and it became much more noticeably red. The areas where I was applying Metrogel and sunscreen and moisturizer began to feel hot and irritated. My regular physician told me to stop the Metrogel, and he put me on oral minocycline (50 mg, once a day). I stopped applying sunscreen and moisturizer. I also scheduled an appointment with a dermatologist because the redness and bumps were starting to get me down. It was a month before I could get an appointment, and then the crusty old dermatologist told me to stop the minocycline, switch to tetracycline 250mg/twice a day, and he gave me a prescription for a lotion containing Lidex (steroidal cream) and a moisturizer called (I believe) Aquamed. Although his prescription called for me to apply the lotion to my face twice a day, I used it very sparingly due to the cautions posted on this site about the usage of steroids, and due to my own research on rosacea. The dermatologist scheduled patients in five minute increments, so he was utterly uninterested in my history, my thoughts on the matter, or counseling me about how to apply the lotion and about the exact nature of my rosacea. After six weeks, the papules and pustules had subsided somewhat, and the dermatologist told me on my follow up to simply keep up the tetracycline. He gave me a prescription for a full year. Complicating everything was my love of swimming and my sensitivity to chlorine (I would sometimes get red spots on my face after swimming). To shield my cheeks and nose from the chlorine, I would often apply a layer of Vasoline to them just prior to swimming. When another outbreak of very red and dry skin occurred a few weeks after the last visit to the dermatologist, I decided to return to my primary care physician because, unlike the dermatologist, he is always willing to listen to me and let me suggest new approaches. We both discussed the possibility that what I was actually seeing on my face was not a more advanced stage of rosacea or a flare up, but actually seborrheic dermatitis. He suggested using Nizoral shampoo as a facial wash. He also agreed with me that it might be a good time to try Noritate, which might be much more gentle on my skin than Metrogel had been. Reading on seborrheic dermatitis showed me that some important things in its treatment run exactly counter to what I had been told about rosacea. Thus I started exercising vigorously so as to sweat (for the first time since the nasty flare up occurred last fall), and I actually deliberately got out into the February sun for a little while. The results came after a couple of weeks, and after I realized I would have to let Nizoral shampoo sit on my skin for five to ten minutes and not simply wash it right off. The redness declined dramatically, the flaking skin disappeared, and I was back to the stage (mild erythema only) where I had been when I first started treatment seven months ago. Whether it lasts, who can say. But I feel I have learned something important. Namely, it's very easy to confuse seborrheic dermatitis with rosacea, and that Vasoline, by clogging my pores, was probably worsening the seborrheic dermatitis much more than it was protecting me. I haven't been swimming for several weeks, but when I go again I am going to lay off the Vasoline and carry some unchlorinated water in a spray bottle to wash off my face immediately every time I take a break, so that the chlorine doesn't dry on my face. I know from my reading of the messages here that my story will match very few people's experiences, but there may be some who will benefit from one or another aspect of it. I remain on tetracycline and Noritate, but will visit my primary care physician after another month or so to see about tapering off the oral antibiotics if everything remains ok until then. Dan P.S. I strongly recommend the following basic article on rosacea, written by the chair of the dermatology department at Tulane University: http://www.postgradmed.com/issues/1999/02_99/millikan.htm Quote Link to comment Share on other sites More sharing options...
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