Guest guest Posted November 10, 2002 Report Share Posted November 10, 2002 Dawn, I don't get individual CF Parents emails; I read the posts from the web whenever I get a chance. In the past year, I've compiled quite a store of information about magnesium and magnesium deficiency and how it pertains to symptoms seen in CF. If you (or anyone else) wants the information I've collected, then please feel free to write me at kimpayne@.... I'll send you attachments that help explain how crucial magnesium is, and also cites sources for more information so you can figure out appropriate dosing and find the right type of magnesium supplement to take. Sometimes it takes experimenting with different types of magnesium to see which works best. Kim -- In cfparents@y..., Dawn Meeks wrote: Say we can't get our doc.s to do the magnesium levels test. How much does an adult, child, toddler, infant need to supplement their diet with? Dawn mom of 4, 6 and under, the youngest wcf -- paynekimj wrote: Jen, I'm willing to bet you won't find a link between a mom having gestational diabetes and giving birth to a child with CF. Remember that it takes a CF gene from both parents to produce a child with CF. However, as you know, whenever you go to a new doctor and fill out forms about family history, you are generally asked if there are any family members with heart disease, diabetes, etc. (I keep waiting for the day that CF will show up on that list!). You also asked if you having GD might increase the risk of your child developing CFRD (CF related diabetes) later. Personally, I believe beyond a shadow of a doubt that in *true* cases where diabetes and arthritis are diagnosed as " CF related " that these are both preventable! It is absolutely criminal that medical doctors have pretty much shrugged off and accepted that some people with CF will " develop " CF-related diabetes and/or CF-related arthritis. I acknowledge that SOME people will develop diabetes, but this CF-related stuff is a joke. If you want to do a study, do a study on people diagnosed with CFRD and CFRA and tell me what their intracellular magnesium levels are. Magnesium is crucial to proper insulin regulation and cell signaling. Magnesium is necessary for keeping calcium in the bones. When magnesium deficiency exists then calcium leaches from the bones and migrates to the tissues and joints. Then you end up with --- drum roll, please --arthritis! AND you end up with osteoporosis, which is another thing doctors now watch for in people with CF. What causes magnesium deficiency? Improper diets, malabsorption (gee, we don't see THAT in CF do we?). Also, three medications strongly used in people with CF deplete magnesium: 1) aminoglycoside antibiotics such as tobramycin, TOBI 2) albuterol 3) theophylline So if you want to help prevent " CF related " diabetes and arthritis, then start taking magnesium supplments and demand that your doctors begin checking intracellular magnesium levels at least once a year! Checking blood levels isn't effective since only 1% of magnesium is found in the blood. 60% is in bone, 40% in cells. If you do a blood test and it shows you're low on magnesium, then studies show that low magnesium really means you're SEVERELY low. If blood levels show normal range, then you're actually low range. Just remember that magnesium needs to be spaced AT LEAST two hours before or after taking macrolide antibiotics such as Zithromax. And if you have kidney involvement, you should first consult with your kidney specialist before supplementing magnesium. Kim Quote Link to comment Share on other sites More sharing options...
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