Beautiful Miracles

[Guest guest]

To ALL,

Why is it that so many don't see this SCD for the solution that it

is? Why is it that family,friends, new reporters, talk show hosts,

doctors and scientists doubt what we all know to be true? So many

Beautiful MIracles...so many lives changed...how can they deny this?

We go to the grandparents for the first time since starting SCD

thirty days ago....I do not look forward to it in the least. They

think we are " fanatical " alright...but not in the since that Elaine

said in her BTVC book! We will be bringing our own foods...but

don't look forward to the discussion about what we are doing and how

we choose to eat. They think we ar NUTS...and not nut flour!

So much skeptism so much doubt..(I know we are not alone

here...Carol has already voiced her frustration with trying to get

Oprah Winfrey's attention, when we started).....you know what some

have already said (some meaning both doctors, family and

friends): " it is just a conincidence....we knew she (KiKi) would

talk when she was ready! It is not a sin to be shy! " My God...if

they had only been around for all those delerium seizures, her pain,

her disappearing from the world...becoming withdrawn from the world

and so depressed......what planet are they on anyway?

It is probably because they only see us every few months...but

still...they don't belive us when we talk to them. My mother in law

became defensive with the potential Label " ASD " , thinking that her

evaluator from Developmental Pediatrics had gone mad...and that we

need to ignore her opinion....and even get a new doctor...that she

doesn't have Celiac DIsease! I became use to hearing that " It runs

in the familyh to be thin, short and all of us had speech problems

that need therapy. " Many cousins have neurological problems all

under five foot tall or not much taller!

My extended family (on both sides) has become so use to being

dysfunctional that they don't know any different...so many have ADD,

ADHD, ASD like problems, learning disabilites, addiction,

alcoholism, osteoporosis, and intestinal problems that all point to

damaged intestines! So now that we heal it is just

a " coincidence " ...or wishful thinking on our part...they will all

learn hope.

My sister is one of the sickest (chronic yeast infections, thrush,

IBS, diarrhea, constant pain when she eats, epelepsy, memory

problems, chronic fatigue, depression and asthma)...yet guess

what?....it sadens my heart to the core......she is the one that is

in the most denial out of all of them! Like us her celiac panel was

negative...her doctor said that there was not chance that she had

Celiac Disease and didn't understand how we could...he wouldn't talk

to our GI specialist that understands this Loop HOLE! Sent her

home...to suffer some more.....she will not take my word as

validation that she has this....she said that she likes the way she

eats! Go figure...like my dad says " you can lead a horse to water

but you can't make them drink " ...the thing is I know they ae

thirsty...some strange form of insanity.

Antoinette (Day 30 entire family, ADHD, ADD, ASD,