wondering about doc after clinic visit

[Guest guest]

Hey everyone!

I took my daughter to clinic last Friday. I asked my doctor a lot of

questions and was disappointed with his responses. I am wondering if some of

his answers are true and if that is what other clinics do.

The first thing I asked is how they prevent the spreading of pseudomonas

from person to person at the clinic. I asked if the patients came to clinic

on different days. He said that all CF patients with or without pseudomonas

are seen on the same days. He said that as long as you are atleast 3 feet

away from a person with pseudomonas you will not get it. He also said that

they clean the rooms after each patient. I don't believe that. I have never

seen anyone do that and it sure doesn't look like the rooms are cleaned very

often.

I asked this question after reading a bunch of Kim Payne's posts on taurine

and vitmains etc. I asked the doc if people with CF would benifit by taking

taurine. He gave me the *what in the hell are you talking about* look and

asked " what would that be used for? " So I answered him. He said that taurine

is an amino acid, blah, blah, blah, and that my daugher doesn't need it.

That she gets all of what she needs from what she eats. He said that nothing

works better than the enzymes and that is why they use them.

I also asked the doc about my daughter needing more vitamins and minerals

other than what is supplied in the ADEK's. He said " like what? " So I

mentioned Magnesium, Calcium, and some others. He said not to worry about

it. He said that everything that she needs is in the ADEK's and in the food

that she eats. He said that what we are giving her is obviously working

because when we first starting seeing him my daughter was very sick and

malnurished. Now she *looks* healthy and is at a good weight. I am not

satisfied with these answers. Just because she " looks healthy " or looks

better than when we first came in doesn't mean she IS healthy and getting

all of the vit. and min. that she needs.

I also always feel rushed when I go there. This time he only listened to her

lungs in two places on her front and said that she sounded good. It took him

like 5 seconds. He couldn't have done a good job, could he? He didn't even

listen to the back.

What do you guys think? Is this the way it is and I am worring for nothing?

Your comments would be greatly appreciated.

Oh, I just remembered this....When asking a few other questions he kept

saying " who are you talking to? " and " where are you getting your

information? " He made me feel like I was asking crazy things and people were

telling me things that were not true. I hope that is not the case as I have

gotten all of my information from you guys.

Thanks again...

Holly, mother of Cheyenne who is almost 5 w/o CF and Kennedy, 10 months w/

CF)

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