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NORMAL LEVELS, LOTSA PAIN

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CAN SOMEONE OUT THEIR PLEASE EXPLAIN HOW LONG IT TAKES BEFORE YOU

HAVE PAIN WITH NO ENZYME ELIVATION. CASSIE HAD 1ST ATTACK N0VEMBER

2000. THE NEXT ONE WAS IN OCTOBER 2001, SINCE THE SHE HAS HAD AT

LEAST 15 ATTACKS, BIG AND SMALL 5 HAVE REQUIRED A HOSPITAL STAY. ONE

WAS CAUSE BY 1ST ERCP. HER LAST HOSPITAL STAY INCLUDED A UPPER

ENDOSCOPY, THEY BIOPSIED HER DUODENUM, GASTRIC ATRIM AND ESOPHAGUS

THIS SURGERY WAS SCHEDULED PRIOR TO HER ATTACK. THIS WAS MID

SEPTEMBER THIS YEAR. SINCE THEN SHE HAS EXPERIENCED 4 EPISODES

LASTING ANYWHERE FROM 2 DAYS TO THE ONE SHES HAVING NOW. ALL TIMES

SHE HAS NOT HAD ELEVATED ENZYMES SO THEY SEND US HOME AND SAY IT'S

NOT HER CP. FIRST TIME THIS HAPPENED I READ A POST THAT REFERED TO

THE JOHNS HOPKINS SITE. IT NEVER MENTIONED HOW LONG BEFORE PAIN WILL

OCCUR AND LEVELS CAN BE NORMAL. I EMAIL SITE INFO TO HER GI. HE DID

CONFIRM TO ME THAT THE INFORMATION WAS CORRECT BUT SAID SHE HAD NOT

HAD PC LONG ENOUGH FOR THIS TO HAPPEN. BY THE WAY, SHE HAS HAD

DIGESTIVE PROBLEMS SINCE I STOPPED BREAST FEEDING HER. OH YEAH, TO

DATE SHE'S STILL IDEOPATHIC AND 12.

PATTY IN BANGOR MAINE

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