Re: Fwd: concerned about 17 year old going to college

November 6, 2002

Hi ,

so what's exactly the problem? Are you worried about the quality of

CF centers in Utah? I am sure that some mebers can give you info

about that.

Or are you worried that won't be caring enough about her

treatments when she is on her own? Compliance and teenagers seemingly

is a constant dilemma :-))

Or do you have questions about her spot on the transplant list if she

moves out of state?

Maybe it's just me, but I am not sure what you are asking for. Or are

you just thinking loud :-))

Peace

Torsten, dad of Fiona 5wcf

> > I have a huge dilema my daughter heather is a senior she is

starting to

> > pick out colleges.the problem is we live in maryland alittle town

called

> > salisbury we go to john hopkins for her cf always have since she

was born

> > she is in and out of the hospital alot at least 3 to 6 times

ayear she has

> > been on transplant list for a year and a half they just put her

on inactive

> > list because she got to the number 1 spot and thankfully they

think she is

> > to healthy to have to do it at this time anyway she has just got

back from

> > a college tour with her school she goes to a christian school she

has her

> > heart set on going to a christian college in UTAH which is 20

hours from

> > where we live i would love to give her the opportunity to go but

HELP what

> > do i do about her health her doctors has anybody had to deal with

this i am

> > so torn about this thasnks for listening to me go on and on

LISA

> > TORNABOUT WHAT TO DO

>

November 6, 2002

---, my daughter is going on 14 in a couple of days and she has

CF. I know I have all ready been worrying about college and she's

got 4 more yrs before that happens. I know right were your coming

from, your thoughts have been mine exactly. She's real good about

doing her meds, but I worry about what happens when I'm not there

and she has all this peer(MS) pressure to go to party's or just stay

up late like all the other girls. If she gets worn down she always

ends up sick. I guess all we can do is pray they will think about

there health, and know the meds are the only thing that will keep

them out of the hospital.

You are not alone!!

Margo

In cfparents@y..., Jstylemaker@a... wrote:

> I think I am worried about all of it she has so much

responsibility to take

> care of her health. teenagers are a handful anyway let alone being

sick.

> maybe i was also thinking aloud. i just worry about her being so

far away

> from home if she gets really sick which has happened before

numerous times

> she has spent a month at a time in the hospital maybe i am also

being alittle

> selfish because i dont want to let go the thing is we have always

pushed her

> to be independent and i guess it has paid off. we have always

encouraged her

> to do and be anything she can. so i know we did something right. i

am just

> really confused and worried and I DONT WANT TO LET GO i guess that

is what it

> boils down to thanks for letting me think out loud LISA

>

November 6, 2002