Guest guest Posted February 27, 2002 Report Share Posted February 27, 2002 Hello, fellow rosacea sufferers. I've been reading posts for some time and find a lot of good information. I have never read a description of exactly my situation. I was diagnosed with rosacea 20 years ago, and acne rosacea 8 years ago. It's the acne part that drives me wild. It progressively gets worse. Last May, my Derm. looked at sample of skin scrapings under a microscope and said that on a scale of 0 to 4, a common parasite " liked my skin a 3. " I found out through my own research that she was referring to Demodex. She gave me a script for Elimite cream (permethrin) and of course, tetracycline. The Elimite really tears up my skin, because it's so harsh, but it does seem to dry up the oily pustules that ooze so bad the oil drips off my chin when I treat them with any topical treatment. I returned to her this last Nov. because my face was again in terrible shape in spite of constant oral antibiotic use, and I was sure it was the Demodex mites again. I was prepared to ask for Invermectrin. She tested a patch of skin above my eyebrow (!!) where there were no papules or pustules, and said I was clear of Demodex. She took skin samples on chin and did a culture of them which showed sporadic staph cells. She prescribed Bactroban ointment. I continue on this viscious cycle of oily bumps appearing, I squeeze, they burst into gushes of oil that will go on for days without treatment. I treat with the strongest stuff I can (Renova, Elimite, Ery-gel, Plexion) and then my face gets irritated, raw, flaky. Then, I treat for dermatitis (perioral). One more question on my mind. Last Dec. I began using Vaniqa. Loved it!! Removed facial hair (mostly on chin and upper lip) with no irritation. Coincidently, my major chin zits began the following Spring. Could there be a connection? BTW, my skin is normally semi-sensitive, combination, but not excessively oily except for the rosacea (or demodex) bumps. Thanks for any ideas or insight. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2002 Report Share Posted March 5, 2002 Hi, have you looked at or thought about low-dose accutane ? it is not for everyone but has shown some good results in reducing acne lesions and reducing rosacea symptoms. Dr. Nase is a strong advocate of accutane in low doses. He gives numerous citations and examples in his book about what can be expected. It is a strong drug so you need to do your homework and weigh up the potential side-effects, but at least the side effects are reduced when you are on a low dose. If you haven't read his book, it is an excellent resource for you and your doctor, esp wrt ld accutane. http://www.drnase.com is the only place where you can order it. The current thought is that demodex have no relation to rosacea. neither their presence nor their side effects cause rosacea - only in a small amount of cases it might make pustules slightly worse, but thats it. His book has a couple of pages on demodex as well. sorry to harp on about `the book' but you really won't get a better reference or text, period. cheers, davidp. -- Pascoe, mailto:dp@..., South Perth, Western Australia On Thursday, 28 February 2002, at 01:29:51 [GMT -0000] you wrote: r> Hello, fellow rosacea sufferers. I've been reading posts for some r> time and find a lot of good information. I have never read a r> description of exactly my situation. I was diagnosed with rosacea 20 r> years ago, and acne rosacea 8 years ago. It's the acne part that r> drives me wild. It progressively gets worse. Last May, my Derm. r> looked at sample of skin scrapings under a microscope and said that r> on a scale of 0 to 4, a common parasite " liked my skin a 3. " I found r> out through my own research that she was referring to Demodex. She r> gave me a script for Elimite cream (permethrin) and of course, r> tetracycline. The Elimite really tears up my skin, because it's so r> harsh, but it does seem to dry up the oily pustules that ooze so bad r> the oil drips off my chin when I treat them with any topical r> treatment. I returned to her this last Nov. because my face was again r> in terrible shape in spite of constant oral antibiotic use, and I was r> sure it was the Demodex mites again. I was prepared to ask for r> Invermectrin. She tested a patch of skin above my eyebrow (!!) where r> there were no papules or pustules, and said I was clear of Demodex. r> She took skin samples on chin and did a culture of them which showed r> sporadic staph cells. She prescribed Bactroban ointment. I continue r> on this viscious cycle of oily bumps appearing, I squeeze, they burst r> into gushes of oil that will go on for days without treatment. I r> treat with the strongest stuff I can (Renova, Elimite, Ery-gel, r> Plexion) and then my face gets irritated, raw, flaky. Then, I treat r> for dermatitis (perioral). One more question on my mind. Last Dec. I r> began using Vaniqa. Loved it!! Removed facial hair (mostly on chin r> and upper lip) with no irritation. Coincidently, my major chin zits r> began the following Spring. Could there be a connection? BTW, my skin r> is normally semi-sensitive, combination, but not excessively oily r> except for the rosacea (or demodex) bumps. r> Thanks for any ideas or insight. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2002 Report Share Posted March 5, 2002 Hi, have you looked at or thought about low-dose accutane ? it is not for everyone but has shown some good results in reducing acne lesions and reducing rosacea symptoms. Dr. Nase is a strong advocate of accutane in low doses. He gives numerous citations and examples in his book about what can be expected. It is a strong drug so you need to do your homework and weigh up the potential side-effects, but at least the side effects are reduced when you are on a low dose. If you haven't read his book, it is an excellent resource for you and your doctor, esp wrt ld accutane. http://www.drnase.com is the only place where you can order it. The current thought is that demodex have no relation to rosacea. neither their presence nor their side effects cause rosacea - only in a small amount of cases it might make pustules slightly worse, but thats it. His book has a couple of pages on demodex as well. sorry to harp on about `the book' but you really won't get a better reference or text, period. cheers, davidp. -- Pascoe, mailto:dp@..., South Perth, Western Australia On Thursday, 28 February 2002, at 01:29:51 [GMT -0000] you wrote: r> Hello, fellow rosacea sufferers. I've been reading posts for some r> time and find a lot of good information. I have never read a r> description of exactly my situation. I was diagnosed with rosacea 20 r> years ago, and acne rosacea 8 years ago. It's the acne part that r> drives me wild. It progressively gets worse. Last May, my Derm. r> looked at sample of skin scrapings under a microscope and said that r> on a scale of 0 to 4, a common parasite " liked my skin a 3. " I found r> out through my own research that she was referring to Demodex. She r> gave me a script for Elimite cream (permethrin) and of course, r> tetracycline. The Elimite really tears up my skin, because it's so r> harsh, but it does seem to dry up the oily pustules that ooze so bad r> the oil drips off my chin when I treat them with any topical r> treatment. I returned to her this last Nov. because my face was again r> in terrible shape in spite of constant oral antibiotic use, and I was r> sure it was the Demodex mites again. I was prepared to ask for r> Invermectrin. She tested a patch of skin above my eyebrow (!!) where r> there were no papules or pustules, and said I was clear of Demodex. r> She took skin samples on chin and did a culture of them which showed r> sporadic staph cells. She prescribed Bactroban ointment. I continue r> on this viscious cycle of oily bumps appearing, I squeeze, they burst r> into gushes of oil that will go on for days without treatment. I r> treat with the strongest stuff I can (Renova, Elimite, Ery-gel, r> Plexion) and then my face gets irritated, raw, flaky. Then, I treat r> for dermatitis (perioral). One more question on my mind. Last Dec. I r> began using Vaniqa. Loved it!! Removed facial hair (mostly on chin r> and upper lip) with no irritation. Coincidently, my major chin zits r> began the following Spring. Could there be a connection? BTW, my skin r> is normally semi-sensitive, combination, but not excessively oily r> except for the rosacea (or demodex) bumps. r> Thanks for any ideas or insight. Quote Link to comment Share on other sites More sharing options...
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