Have not posted here in a while- questions concerning enzymes

[Guest guest]

Hello Again All : )

Although I have kept reading the posts here as much as I was able ,I

have not posted myself in a while. My name is Deborah and I have 3

children- ages 10, 7, and 4- the youngest- Elisabeth with CF. This

afternoon when we went to the pharmacy to pick up Elisabeth's

prescriptions, including her Enzymes- our pharmacist had a long talk

with us. Now Elisabeth takes Ultrase MT12- enzymes- he told us that-

the makers of this enzyme- " Axcan Scandipharm " have raised thier

cost of the enzymes and that Medicaid- which is what Elisabeth has-

is refusing to pay for them now- He says they will pay for a generic

form or some other enzyme but not the ones we currently use. He said

it is not just the Medicaid program that is causing trouble- He said

insurance companies of other CFr's he gives the same enzymes to are

requiring more of a copay for these same enzymes. Elisabeth just

switched to these particular enzymes about 6 months ago.

We think they work wonderfully and her weight has increased- not to

mention the added bonus of getting the Scandishakes and ADEK for free.

I am wondering if anyone else has encountered this yet- should I call

Scandipharm and ask them why the sudden rate increase in the cost of

thess enzymes ? The pharmacist did fax something to the doctor to

fill out for Medicaid asking if these were the " only " enzymes she

could use or could she use others- I hope he tells them " these: are

the ones she needs!!!!

Deborah- homeschooling mother of 3- the youngest

Elisabeth-4 with CF