Re: new member and questions/concerns

[Guest guest]

> I have several concerns and questions still. We did not do the

> intro diet as I just needed to feel like there were lots of foods

> available to me. I just feel hungry on this diet...any thoughts.

> Here's my issue: I can eat as much as I want on this diet, right?

> But I just don't " like " the foods that I'm eating. They don't have

> the right texture and the right kind of taste. I understand

> cravings and see them clearly in my own life...but living without

> rice and pasta feels so limiting because I want to be full and I

> want energy. I don't do that well with meats but do eat them.

Gwen, I share your concerns. My son is not on the autism spectrum but

does have Crohns and this is a major problem for him. Remicade - the

actual process and potential side effects - scares him (and us) but he's

still having a hard time. He doesn't like squash and misses bread. (And

keeping kosher, I would have to have a non-dairy bread with his

hamburgers, etc.) So I wish you luck, and send you the assurances that it

is worth it and works.

Hopefully, filling yourself up on the good stuff - tasty proteins,

vegetables, etc. - will help with your cravings and let you be an example

for your son.

> Lastly, and i hope some of you actually try to get through this long

>

> email of mine, what about tests. Someone mentioned IGa tests. I

> would feel better if we could test for dysbiosis/leaky gut and know

> that we aren't cutting out all gluten free grains for naught. Also,

>

> wondering if you all trust the labs that are sometimes recommended?

Have you taken your son to a pediatric GI? Take care, Fay

[Guest guest]

Welcome to the group Gwen,

> We went on the diet because I have undiagnosed IBS and my son has

> chronic constipation is very underweight (though quite healthy and

> active). I deliberated with my decision to put us back on the SCD

> for many months. I do not like to cook and I, myself, have sensory

> issues around food. When I was young I would only eat a handful of

> foods and though I eat a variety of foods now, I'm pretty picky

> about the way food tastes and is prepared. I, too, am quite thin

> but do not look unhealthy at all.

>

> So...here I am among so many of you who have children with chronic

> issues like ASD and celiac disease. I feel humbled by some of the

> stories I read of others who are on the diet. I feel that we are

> pretty healthy comparitively but know that it is a good time to

> start resolving a leaky gut issue if there is one.

>

> We thought that maybe ds' underweight issue could be a

malabsorbtion

> issue but I'm beginning to think he's just going to be a small guy

> like me. I'm not convinced that he should somehow be bigger than

he

> is just because the charts say so, though I know some of you may

> disagree.

Your son's chronic constipation issue indicates some gut problems

which would lead to malabsorption and possibly be behind him being

underweight.

> I have several concerns and questions still. We did not do the

> intro diet as I just needed to feel like there were lots of foods

> available to me. I just feel hungry on this diet...any thoughts.

The intro diet is only for 2-5 days. 4-5 days maximum for those

with diarrhea and 2-3 days for evrything else. Although it is not

essential to do the intro it helps determine if there are problems

with any particular foods (ie. legal foods that the body is not

ready to digest yet.)

As for feeling hungry - this is very normal at the start of the diet:

your body is switching from rumen type digestion to actual human

digestion and your body is healing (which will burn extra calories

and make you hungrier). Some of this may also be due in part to all

the little nasty critters " crying out " for their fix of starchy

foods.

> Here's my issue: I can eat as much as I want on this diet,

right?

> But I just don't " like " the foods that I'm eating. They don't

have

> the right texture and the right kind of taste. I understand

> cravings and see them clearly in my own life...but living without

> rice and pasta feels so limiting because I want to be full and I

> want energy. I don't do that well with meats but do eat them.

Lack of energy is also normal at the beginning of the diet. It

comes from dealing with the die off of the harmful microorganisms

and the switch in types of feeding. Once over that period many find

that their energy levels increase to far above what they were when

eating the SAD diet. (not to mention a clarity in their thinking

processes.)

> As for my son, well, last go around with SCD he ate like it was

> going out of style and gained a pound in less than a month. This

> time, he eats very little and seems to have lost his taste for

> anything with almond flour in it.

> He used to love the waffles but

> doesn't anymore. He used to eat scrambled eggs but doesn't

> anymore..though he does like deviled eggs, so we're doing those

> instead of scrambled. I, too, have lost the taste for eggs in the

> morning. He doesn't eat much at all anymore. Is this a food

> strike? The other issue is that before, when just on enzymes, he

> was finally pooping once everyday but the poops were big and dry.

> Now he poops irregularly and they are mushy and sometimes

> sticky/mushy. He tends toward gassiness too.

Sometimes when people do the diet for a short time or go off it far

too soon they end up killing only a small portion of the harmful

microbes in their gut and are left with only the nastiest and

hardiest microbes. This is similar to what can happen if you only

do a portion of treatment of antibiotics . The easier to kill,

weaker microbes are killed first and the hardiest are killed toward

the end of the treatment. If you stop too soon you can end up with

just the really nasty ones at the end.

What foods is he eating now? Are fruits and veggies cooked? With

mushy stools it sounds as if he needs easier to digest foods until

some gut healing occurs.

> As for me, here's what has happened. I feel hungry a lot but do

> curb it with eating nuts. I have a constant pain in my left

> side/gut. Could this be gas? could this be from the nuts?

Whole nuts are for later after some healing occurs. Elaine

recommended sticking with but flours at the beginning of the diet.

(blanched almond flour or pecan flour baked goods are the easiest to

digest). So the pain indicates you aren't ready for whole nuts.

Also,

> a few nights I felt so buzzy when I lay down to sleep that I

cannot

> sleep. I do not feel hungry or lightheaded on those nights. It

> feels like I've had coffee, which I don't drink...Any

thoughts?????

> This is a major concern for me.

This could be die off.

> We haven't been doing the probiotics religiously. I took

Culturelle

> a few weeks and felt worse than I have in years and I think ds did

> too! I am now trying acidolphilus straight up and just small

> doses. Made my first good batch of yogurt today! We do eat a lot

> of yogurt and have never had a problem with milk.

>

> Wondering also about what people mean when they say they have

> a " problem " with certain foods. For me, milk was fine and some of

> the SCD legal cheeses not okay. I mean, they don't give me

symptoms

> of IBS.

Milk is not SCD legal, but is okay when made into yogurt. What

people are referring to is that they aren't healed sufficiently to

be able to tolerate certain foods.

> I'm really worried about my son mainly, because he was eating so

> much before...but usually all wheat and sugar...and now he eats

very

> little and wants to look in cupboards/refidge over and over. I'll

> pull out cashew butter, he'll eat a few bites

Cashew butter is harder to digest and is for later after some

healing has occured. It sounds as if he is going through die off.

Please see

http://pecanbread.com/difficulties.html#initial

http://pecanbread.com/badreaction.html

Epsom salt baths and/or activated charcoal may be helpful for both

of you.

Sheila, SCD 61 mos, UC 22 yrs

mom of and

[Guest guest]

Welcome to the group Gwen,

> We went on the diet because I have undiagnosed IBS and my son has

> chronic constipation is very underweight (though quite healthy and

> active). I deliberated with my decision to put us back on the SCD

> for many months. I do not like to cook and I, myself, have sensory

> issues around food. When I was young I would only eat a handful of

> foods and though I eat a variety of foods now, I'm pretty picky

> about the way food tastes and is prepared. I, too, am quite thin

> but do not look unhealthy at all.

>

> So...here I am among so many of you who have children with chronic

> issues like ASD and celiac disease. I feel humbled by some of the

> stories I read of others who are on the diet. I feel that we are

> pretty healthy comparitively but know that it is a good time to

> start resolving a leaky gut issue if there is one.

>

> We thought that maybe ds' underweight issue could be a

malabsorbtion

> issue but I'm beginning to think he's just going to be a small guy

> like me. I'm not convinced that he should somehow be bigger than

he

> is just because the charts say so, though I know some of you may

> disagree.

Your son's chronic constipation issue indicates some gut problems

which would lead to malabsorption and possibly be behind him being

underweight.

> I have several concerns and questions still. We did not do the

> intro diet as I just needed to feel like there were lots of foods

> available to me. I just feel hungry on this diet...any thoughts.

The intro diet is only for 2-5 days. 4-5 days maximum for those

with diarrhea and 2-3 days for evrything else. Although it is not

essential to do the intro it helps determine if there are problems

with any particular foods (ie. legal foods that the body is not

ready to digest yet.)

As for feeling hungry - this is very normal at the start of the diet:

your body is switching from rumen type digestion to actual human

digestion and your body is healing (which will burn extra calories

and make you hungrier). Some of this may also be due in part to all

the little nasty critters " crying out " for their fix of starchy

foods.

> Here's my issue: I can eat as much as I want on this diet,

right?

> But I just don't " like " the foods that I'm eating. They don't

have

> the right texture and the right kind of taste. I understand

> cravings and see them clearly in my own life...but living without

> rice and pasta feels so limiting because I want to be full and I

> want energy. I don't do that well with meats but do eat them.

Lack of energy is also normal at the beginning of the diet. It

comes from dealing with the die off of the harmful microorganisms

and the switch in types of feeding. Once over that period many find

that their energy levels increase to far above what they were when

eating the SAD diet. (not to mention a clarity in their thinking

processes.)

> As for my son, well, last go around with SCD he ate like it was

> going out of style and gained a pound in less than a month. This

> time, he eats very little and seems to have lost his taste for

> anything with almond flour in it.

> He used to love the waffles but

> doesn't anymore. He used to eat scrambled eggs but doesn't

> anymore..though he does like deviled eggs, so we're doing those

> instead of scrambled. I, too, have lost the taste for eggs in the

> morning. He doesn't eat much at all anymore. Is this a food

> strike? The other issue is that before, when just on enzymes, he

> was finally pooping once everyday but the poops were big and dry.

> Now he poops irregularly and they are mushy and sometimes

> sticky/mushy. He tends toward gassiness too.

Sometimes when people do the diet for a short time or go off it far

too soon they end up killing only a small portion of the harmful

microbes in their gut and are left with only the nastiest and

hardiest microbes. This is similar to what can happen if you only

do a portion of treatment of antibiotics . The easier to kill,

weaker microbes are killed first and the hardiest are killed toward

the end of the treatment. If you stop too soon you can end up with

just the really nasty ones at the end.

What foods is he eating now? Are fruits and veggies cooked? With

mushy stools it sounds as if he needs easier to digest foods until

some gut healing occurs.

> As for me, here's what has happened. I feel hungry a lot but do

> curb it with eating nuts. I have a constant pain in my left

> side/gut. Could this be gas? could this be from the nuts?

Whole nuts are for later after some healing occurs. Elaine

recommended sticking with but flours at the beginning of the diet.

(blanched almond flour or pecan flour baked goods are the easiest to

digest). So the pain indicates you aren't ready for whole nuts.

Also,

> a few nights I felt so buzzy when I lay down to sleep that I

cannot

> sleep. I do not feel hungry or lightheaded on those nights. It

> feels like I've had coffee, which I don't drink...Any

thoughts?????

> This is a major concern for me.

This could be die off.

> We haven't been doing the probiotics religiously. I took

Culturelle

> a few weeks and felt worse than I have in years and I think ds did

> too! I am now trying acidolphilus straight up and just small

> doses. Made my first good batch of yogurt today! We do eat a lot

> of yogurt and have never had a problem with milk.

>

> Wondering also about what people mean when they say they have

> a " problem " with certain foods. For me, milk was fine and some of

> the SCD legal cheeses not okay. I mean, they don't give me

symptoms

> of IBS.

Milk is not SCD legal, but is okay when made into yogurt. What

people are referring to is that they aren't healed sufficiently to

be able to tolerate certain foods.

> I'm really worried about my son mainly, because he was eating so

> much before...but usually all wheat and sugar...and now he eats

very

> little and wants to look in cupboards/refidge over and over. I'll

> pull out cashew butter, he'll eat a few bites

Cashew butter is harder to digest and is for later after some

healing has occured. It sounds as if he is going through die off.

Please see

http://pecanbread.com/difficulties.html#initial

http://pecanbread.com/badreaction.html

Epsom salt baths and/or activated charcoal may be helpful for both

of you.

Sheila, SCD 61 mos, UC 22 yrs

mom of and