Guest guest Posted December 18, 2002 Report Share Posted December 18, 2002 Hello to all, I really need some help here. I have been a member for about 3 months now because of my daughter Cassie. I read everyone's posts every day. I think I have finially found Cassie's attack trigger only problem is I can't get any of her DR's to agree. Several of you early on talked about the relationship between stress and CP attacks. Where can I find information to back this so her Dr's will back me on this. Let me explain, Every morning she gets up and goes to school sometime between 10 and noon she calls me to come home due to pain. Her pain does not exist out side the school year. Last year she only had 5 attacks the year before it was one. I can trace the events of her life at those times to stress at school. Now comes our problem. Cassie has ADHD as well as a non verbal learning disorder. She is not on anything for the ADHD due to damage it can cause her liver and she already has adnormal lab work for that. So she has this teacher that she has for 3 classes. the 1st one is in the AM the other 2 after lunch. This woman stresses her out so much and picks on her due to CP related absenses. and of course the usual " you don't look sick to me " . I am now in a big fight with the school system trying to get her away from this woman because her Dr's her locally have never heard of this. I really need to get this sitation resolved, my kid needs an education she also needs to have pain free days just like the rest of you also. We already have problems getting her any pain relief, she's only 12 we wouldn't want to cause her to become addicted. That's the Dr's not me unless her levels rise to 3x's normal and she's throwing up they give her nothing. Yes, I have been trying for 2 months to get her referred to pain management. It's not the insurance but the pain clinics, without a Dr's referal no appointment. Anyway we feel so helpless, this is my baby and I can't seem to get anywhere with school or her Dr's. I got told by her GI in Portland today that i knew more about SPINK1 mutation and it's relatioship to CP than he did. Boy do I feel confident. Help! Patty and Family in Bangot ME Quote Link to comment Share on other sites More sharing options...
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