new member and questions/concerns

[Guest guest]

Hello,

I am a new member to this website but have been trying the diet for

a few weeks. Actually this is the second go around with starting the

diet...and I wish we hadn't gone off the diet but it was hard over

the holidays. My friend who hosted Thanksgiving weekend, tried to

fix all this gluten free food...because she thought that's what the

diet was all about...and we had to tell her that her rice and potato

dishes were acceptable...so we went off the diet.

We went on the diet because I have undiagnosed IBS and my son has

chronic constipation is very underweight (though quite healthy and

active). I deliberated with my decision to put us back on the SCD

for many months. I do not like to cook and I, myself, have sensory

issues around food. When I was young I would only eat a handful of

foods and though I eat a variety of foods now, I'm pretty picky

about the way food tastes and is prepared. I, too, am quite thin

but do not look unhealthy at all.

So...here I am among so many of you who have children with chronic

issues like ASD and celiac disease. I feel humbled by some of the

stories I read of others who are on the diet. I feel that we are

pretty healthy comparitively but know that it is a good time to

start resolving a leaky gut issue if there is one.

We thought that maybe ds' underweight issue could be a malabsorbtion

issue but I'm beginning to think he's just going to be a small guy

like me. I'm not convinced that he should somehow be bigger than he

is just because the charts say so, though I know some of you may

disagree.

I have several concerns and questions still. We did not do the

intro diet as I just needed to feel like there were lots of foods

available to me. I just feel hungry on this diet...any thoughts.

Here's my issue: I can eat as much as I want on this diet, right?

But I just don't " like " the foods that I'm eating. They don't have

the right texture and the right kind of taste. I understand

cravings and see them clearly in my own life...but living without

rice and pasta feels so limiting because I want to be full and I

want energy. I don't do that well with meats but do eat them.

As for my son, well, last go around with SCD he ate like it was

going out of style and gained a pound in less than a month. This

time, he eats very little and seems to have lost his taste for

anything with almond flour in it. He used to love the waffles but

doesn't anymore. He used to eat scrambled eggs but doesn't

anymore..though he does like deviled eggs, so we're doing those

instead of scrambled. I, too, have lost the taste for eggs in the

morning. He doesn't eat much at all anymore. Is this a food

strike? The other issue is that before, when just on enzymes, he

was finally pooping once everyday but the poops were big and dry.

Now he poops irregularly and they are mushy and sometimes

sticky/mushy. He tends toward gassiness too.

As for me, here's what has happened. I feel hungry a lot but do

curb it with eating nuts. I have a constant pain in my left

side/gut. Could this be gas? could this be from the nuts? Also,

a few nights I felt so buzzy when I lay down to sleep that I cannot

sleep. I do not feel hungry or lightheaded on those nights. It

feels like I've had coffee, which I don't drink...Any thoughts?????

This is a major concern for me.

We haven't been doing the probiotics religiously. I took Culturelle

a few weeks and felt worse than I have in years and I think ds did

too! I am now trying acidolphilus straight up and just small

doses. Made my first good batch of yogurt today! We do eat a lot

of yogurt and have never had a problem with milk.

Wondering also about what people mean when they say they have

a " problem " with certain foods. For me, milk was fine and some of

the SCD legal cheeses not okay. I mean, they don't give me symptoms

of IBS.

I'm really worried about my son mainly, because he was eating so

much before...but usually all wheat and sugar...and now he eats very

little and wants to look in cupboards/refidge over and over. I'll

pull out cashew butter, he'll eat a few bites and then he'll want

fruit, eat a couple of bites, then want waffles, etc. etc. I still

wonder about reflux..if that is what he has. He just seem to like

anything all that much. I've made replacement foods for him like

pizza and what not but he just doesn't chow down on them. He seems

pretty punchy at times. I wonder about low blood sugar.

I just wonder if the enzymes and probiotics aren't enough for him.

He was doing well....meaning pooping everyday...but not gaining

weight. I don't feel like he has major problems, especially after

reading other people's stories. Is there anyone else on here with

mild issues?

Lastly, and i hope some of you actually try to get through this long

email of mine, what about tests. Someone mentioned IGa tests. I

would feel better if we could test for dysbiosis/leaky gut and know

that we aren't cutting out all gluten free grains for naught. Also,

wondering if you all trust the labs that are sometimes recommended?

LIke Entero, Great Plains etc.

Thanks and looking forward to getting advice.

gwen

Luca ds almost 3