Guest guest Posted December 11, 2002 Report Share Posted December 11, 2002 Dear Krystena, I am so very happy for you .I do believe you must accept for the moment what they have said to you & do the best you can for your precious one.......I wish you all the wonderful times in the world with your precious family. Have a super holiday/ LOVE & HUGS, grandmomBEV update on Caden Hi all. The pulmonologist told me yesterday that his report meant NO Cystic Fibrosis. That is great. For now, that is all I can go on. I guess it ispossible that he could have some rare unidentified mutations. Unless the genetic counselor tells me other wise, I am going to once and for all be satisfied and confident that he is in the clear. However, it doesn't change the fact that he still needs immediate attention to his sinuses and malabsorption. I guess we will take this up with his metabolic dr Friday. Maybe it is related to his FOD. Who knows.. Caden's eyes are so swollen and red underneath today. I have done the nasal washes for two days now. Yesterday's was a success. This morning. Nothing came out. They are supposed to call me today with his blood allergy test and sinus CT report. I just wanted to thank you all so much for all of the support you have given me. As devestating as it was to think my son could have been afflicted with not one but two life threatening diseases, I am thankful to have learned all that I have about Cystic Fibrosis. I wish you all a very Merry Christmas and you will always be in my heart. Love, Krystena s Caden 4 yrs Glutaric Aciduria type II Quote Link to comment Share on other sites More sharing options...
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