Sheila: good news! (Lucas)

[Guest guest]

Hi Sheila...thanks so much for your reply. I have some exciting news since

my last post. Lucas began to refuse to drink the coconut milk a few days

ago. He has done this many times in the past as well with the brown rice

milk and any fluid. His thirst mechanism may still be affected from his

surgery. (He may also probably be trying to tell us that the milks are

bothering his stomache) This makes it very challenging for us - Lucas

becomes irritable and more aggressive due to the increase in his sodium

levels/dehydration. I took advantage of this though and I stopped the

coconut milk altogether! We've been giving Lucas the Santa Cruz Organic

White Grape Juice diluted with lot's of water. The ingred. are filtered

water, organic conc. white grape juice - is this legal? (I'm not crazy about

juice, but he needs to drink something) We have to force him at times which

is very difficult for all of us, but I feel so much better that he is not

drinking milk. So although we've been doing SCD since January, we're now

really doing SCD! I consider Lucas on SCD for 3 days now! I will try the

bananas and water as well. Thanks.

Lucas has been having almond flour this whole time. I feel that he was or

has become sensitive to this. I just made some pecan butter bread but he is

refusing to eat it. He is eating almond/pecan flour zucchini muffins, raw

apples and pears, raw carrots, banana pancakes, almond pancakes, carrot

bread, turkey/chicken burgers with salt and veggies. He was much more picky

before SCD, but is a bit better now. I know the raw friuts and veggies are

not the best right now, but it's so hard to get Lucas to eat anything else.

I know he is so hungry and I feel awful when he is not being satisfied.

As for the epsom salt baths, we've been wanting to do this but wondering if

this could dehydrate Lucas at all/affect his sodium levels. He does take

APO-DESMOPRESSIN spray 1xday to help his body retain water. The ingred.

listed are desmopressin acetate in a buffered, isotonic, aqueous solution

containig .01 % benzalkonium chloride as a preservative. Is this legal?

We continue to pray that Lucas' ADH (anti-diurrhetic hormone) will kick in

fully, but in the meantime if we do not give him his medicine, he will

urinate everything out and dehydrate.

We are not using any applesauce at this time, but I was hoping Lucas would

eat some homemade pear sauce instead. I would love to start on yogurt, but

I think we are going to hold off for a few months at least.

In the meantime, I will check out the supplements list and get Lucas

started. As for foods, I am going to slowly start to introduce new foods

and hope that Lucas will eat them.

Any other suggestions are greatly appreciated. Thanks for all your support

and advice.

Anita - " mama " to Lucas-4 years 9mos (neurosurgery '04, DI, ASD) SCD 3 days!

>

>Reply-To: pecanbread

>To: pecanbread

>Subject: Re: coconut chicken/shrimp

>Date: Mon, 06 Mar 2006 18:12:37 -0000

>

>Hi Anita,

>

> > Hi Sheila. I've been wanting to use shredded coconut that is

>called for in

> > some recipes but all that I have found has sulphites in it. I'd

>prefer to

> > have no sulphites, but wondering if they are legal.

>

>Yes, the sulphites are legal. You may be able to find sulphite

>free, sugar free coconut at health food store (is there a whole

>foods near you) . I believe our local grocery carries natural

>coconut in their " Natural foods " section.

>

>I have also been giving

> > my son Lucas organic coconut milk (diluted) to replace the brown

>rice milk

> > he was drinking for 2 years. I know that I can make my own,

>however I was

> > hoping to find something legal I could purchase as I have 3 little

>one's

> > under age 4 1/2 and one on the way. It has been difficult trying

>to get

> > Lucas to drink other things. He does not drink on his own (he

>used to) and

> > must have so much fluid/day as he has Diabetes Insipidus (as a

>result of

> > neurosurgery May '04 to remove a tumour in the hypothalamus). My

>husband

> > and I spoon it into him. Will the bit of guar gum prevent Lucas

>from

> > healing fully?

>

>Unfortunately, the guar gum can feed the " nasties " . Will he drink

>any of the legal diluted juices? What about homemade almond milk...

>(is he allergic to other nuts)? How about banana smoothies? If he

>isn't ready for yogurt yet you can blend ripe bananas with water and

>use that as a bevarage.

>

> > He used to love soup but no longer. We do not stop trying

>though. We could

> > not do the intro diet as Lucas would not eat any of the suggested

>foods.

> > Since starting a few months ago Lucas' stools have been quite soft

>and runny

> > at times. Lately they have been sandy as well.

>

>If not using nut flours or coconut the sandy stools may be result of

>bile salt from die off etc.. Epsom salt baths and/or activated

>charcoal may help.

>

> He has started to bang his

> > head again and other autistic tendencies have begun to reappear.

>Prior to

> > starting Lucas had regular bowel movements (1-3/day). We have not

> > introduced any probiotics or enzymes yet, although I am quite

>eager to do

> > so. I just want to make sure that we are purchasing the right

>ones and can

> > get Lucas to take them in applesauce.

>

>There are some legal supplements listed at

>www.pecanbread.com/supplements

>

>Are you using homemade applesauce?

>

>Sheila, SCD 61 mos, 22 yrs UC

> mom of and

>

>

>

>

>

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