2 negative sweat tests, slow growth

[Guest guest]

Hi,

I've never posted on here before, but I have done a lot of reading

and have really benefitted from the conversations in this group. I

am a mother of five children, including 4-year Ambrose wcf.

I am writing now because I am looking for insight and information.

My son , who is 15 months old, has had two negative sweat

tests (both done at approved cf centers). One was done when he was

four weeks old, and the second was done when he was 8 months old,

because he was not growing well and drs suspected the first result

was a false negative. At that point, he was below the chart for both

height and weight, and continued dropping (not losing weight, but

falling farther off the chart) for a couple of months. After the

second negative result, we trusted the results and tested him for

other chronic illnesses and infection: all negative. So we just

decided to encourage a high-calorie diet and see how he did.

Well, last week, at his regular check up, we found he was back on the

chart for his height (20th percentile) but just below normal for his

weight. I should mention that I come from a family of small people.

My husband is average height and weight, but I am 5'1 " and weigh

about 110 lbs (when I'm not pg LOL). has no respiratory

symptoms.

At the dr's suggestion, we are now scheduling a genetic test and I

wonder if anyone can give some insight about the accuracy of sweat

tests vs genetic testing. Ambrose has 2 delta F508 so the cf center

said it would be easy to test . Also, what can anyone tell me

about cf carriers presenting with cf-like symptoms? I know very

little about this.

Thank you all for any help or info you can provide. I truly

appreciate it.

le

(homeschooling mom to Kateri, 7yo wocf; Eamon, 6yo wocf; Ambrose, 4yo

wcf; tte, 3yo wocf, and , 15 months and ?????)