Tip for living with CF

[Guest guest]

Good Idea Kim...I think that those on this list that have had CF in

their life can really hope those of us that sometimes feel so alone.

My tip:

CF treatment concentrates primarily on the paitent, as it should. But

as caregivers, we have to remember to treat ourselves in the process.

I see so many posts about parents and their feelings of hopelessness

and depression. Talk to the social worker at the hospital, get a

referal if necessary. It's okay to use medicine as a " crutch " now and

then if it's perscribed (sp). So many of us feel like we have failed

if we are not able to be strong at all times. Being on this list is

the first step to self help. No one understands more than someone who

has walked in your shoes. Remember, we can't take care of our kid's

if we don't take care of ourselves.

Secondly, keep a stash of Ben and Jerry's hidden in the back of the

freezer for the really thoug times