Re: Question/J

[Guest guest]

---Hi Deb,

Sorry I posted almost the same thing twice. The first time I wrote

back to you I didn't think it went through so I did another reply.

No, I don't mind if you use my e-mail. Anything that helps!!!

J.

In cfparents , gdattig5@a... wrote:

> In a message dated 12/24/2002 4:11:08 PM Central Standard Time,

> j.larocque@v... writes:

>

>

> > ---Hi Deb,

> > The symptoms you are describing are very familiar. I'll give you

a

> > quick history. My daughter 10 w/cf was on Bactrim for

> > Stenotropomonis (spelling)? Her then CF clinic doc decided to

leave

> > her on Bactrim for a base anitbiotic. We kept complaining that

she

> > had no appetite, very tired and stomach problems---The doc didn't

> > listen to us. My daughter wasn't gaining any weight and the doc

kept

> > putting her on I.V. antibiotics. Anyway long story short--we

> > switched doctors in the mean time for a lot of reasons and he

> > immediately took her of Bactrim. She has only had to go on it

once

> > since for about 2 weeks for the same germ and we again noticed

the

> > same symptoms almost immediately but got through because it was

only

> > for 2 weeks to work on the bug. The new doc said he gave her

high

> > dose for short period because of all the side effects and that

> > Bactrim was known for the symptoms we described. My advice to you

is

> > to be sure to relay all symptoms to the doc and make sure he/she

> > listens to you as you know your child better than anyone. Also

since

> > switching doc's my daughter has gone from under 25th percentile

to

> > over 50 percentile and her PFT's have increased dramatically.

> > I blame most of the problem of her weight etc. on Bactrim and a

doc

> > that wouldn't listen.

> > Good Luck

> > J.

>

> I think I will send the nurse practitioner your letter if you don't

mind to

> prove to her that others have had these problems too. Deb A

>

>

>