Second Letter from

[Guest guest]

yes deb you are allowed to post my message if you want

too..i cant seem to post anything right now.. anyway

he did not have pneumonia but in the pattern of cystic

fibrosis there seem to be the cyst that develop in the

lungs which i knew that anyway when it end stage of

lung disease then the cyst open up like a flower and

they hinder the breathing and eventually cut off all

air supply to the lungs.. the CO2 cant get out and you

sufficate.. so they saw that on the xrays that they

did the day he got back to arkansas childrens

hospital..and that is when they told us and he was

already beginning to struggle with breathing..so they

gave him morphine to make him not fight to breathe..

and he hung on until my son that has cf got there

cause our home is 4 hours away from the hospital.. he

hung on cause he needed to let uncle daniel say

goodbye to him..i never want to watch another family

member leave this world.. i will but i really dont

want to ever have to do that.. but he fought a good

fight and he was just too young and the lungs just got

weak and he couldnt do it any longer..i wish many

wishes that he had gotten to meet elton john but that

is in the past now but that is really what he wanted

to do..anyway thank you for listening i know that it

is not good news that i am bringing here but i jsut

wanted everyone to know that i have chatted with and

that this i s agood group and i do enjoy the support

and comments that i get from everyone.. taloen was the

light of my life and i know that someday i willbe with

him but i have to be the strong one here and keep his

mother and the rest of the family going now.. i just

have to have my days that i just sit there and cry

cause i dont know what else to do.. anyway i need to

get off of this thing for now and talk toyou later..

just wanted to say thank you for listening to me..

mary