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[Guest guest]

Steve and Louise,

His PA's will never go away. They are always in his lungs I guess

it's just a matter of whether or not they are laying dormant or

causing infections. Before the TOBI every other month he used to have

this horrible cough and he has never really had one before. His

baseline cough is practically nothing. Now he's back to his baseline

cough and so far we've had no problems from the psudamonas. We take

throat cultures every three months to make sure they are not causing

any problems and the counts are low.

Wyatt has never had IV treatments for anything. He has never been

hospitalized so on that I don't know what to say. sorry but I " m sure

you'll get lots of responses from those more experienced.

I guess at some point if the PA's are caught soon enough you can

get rid of them for a time. That's when you do the colistin and cipro

route. A lady here, in Hawaii, her daughter had PA's did the colistin

and cipro then they went away for almost 6 months and then she had to

do cipro and colistin again. I think she's been clear lately.

Christy

>

>

> What does is it mean to consider someone colonized?

> age 5 and a half has been culturing PA since December

of '01. The

> first time she was admitted for IV treatments. Since then she has

been

> positive two more times. The Doctors have her on the four weeks on

Toby

> Four weeks off cycle. With an added Cipro for 14 days. But she

still

> continues to culture positive and currently has bronchitis. She

finished

> her cycle of Tobi two weeks ago. However the problem:

> Last Thursday she was diagnosised with bronchitis and is again on

Toby

> for two more weeks. Monday the 18th she is scheduled for surgery

to have

> her feeding tube placed. If her lungs have not gotten any better

the

> operation will be postponed.

> My question is - With P.A. and the on and off treatment using Toby

and

> still culturing positive. In your experiences, would you think a

treatment

> of IV antibiotics would work better at this point. I don't think

she has

> been " clean " since last December when she actually did have P.A.

and was on

> tobrimyocin(sp.) IV? Thanks

>

>

> Steve & Louise

> Grandparents to Princess 5 and a half years WCF

> and Her footman, Stevie 3 years WOCF