Re: Message For Fred/ Letter from Santa

[Guest guest]

In a message dated 12/22/2002 7:49:27 AM Central Standard Time,

littlezoester@... writes:

> Fred,

>

>

> I just recently joined this group but I just wanted to let you know

> what an inspiration you are to me.

> Some days are just really hard especially when I see or hear people

> complaining of such stupid trivial things. They don't know what it's

> like to worry daily about your child's health and wonder if you are

> doing everything possible to keep your child healthy. I try to live

> every day to the fullest because I don't know what the next day will

> bring and I have to say that your posts help me.

> I am constantly thinking & praying for Aubrie and her family and all

> the other cf families.

> After reading last nights posts about and Josh's passing I'm

> heart broken and I can't stop crying my children go to the same

> hospital as and although I never met her I'm sure our paths

> have crossed.

> My husband doesn't think this group is good for me because of the

> emotional ups and downs but I think it's helped me in so many ways.

> I'm sure your beautiful Barbi is smiling down from heaven with such

> pride in her father. God Bless you

>

>

> Mom to 14 w/cf, Cody 11 wocf, Zoey 4 wocf,Evan 3 mnths w/cf

Having kids with CF is an emotional roller coaster if you were on this group

or not. Yesterday I found a letter from my oldest who has CF it was written

to Santa Clause she wrote how she really would like to believe in him but she

didn't know for sure so she want him to please leave a picture of himself by

our Christmas tree. Then she started to write how she was afraid to die and

she didn't want it to ever happen until she was at least 100 years old. It

brings tears to my eyes just telling everyone about this. Well, my husband

wrote her a very very sweet letter. I had know idea he did this until

Christmas morning. But it went something like this. Dear I am sorry

that I didn't have time to leave you a picture of me but maybe I can next

year. I hope you have a Merry Christmas. Please don't worry about dying you

are way to young to worry about something like that. Just enjoy life as it

comes because there are so many things for you to enjoy. And remember to do

your vest and medicine so you can stay healthy and remember not to be upset

with your Mom and Dad when they ask you to do your treatments and vest

because they love you very much and make you do these things to keep you

health. Hope you have a Merry Christmas and remember to be good. Santa.

Tear ran down my face when I read this letter and I had to leave the room so

my girls wouldn't see me crying and wonder what was wrong. It was one of the

sweetest things he has ever done. But you know I think it did help her

understand a little bit what we are trying to do because when she was reading

this letter she kept telling me Mom this is Dad's handwriting I know he wrote

this. I'm hoping it helps her understand how much we love her and how we are

doing everything we can to keep her with us even though I won't see her at

100 I hope she makes it there. Deb A