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[Guest guest]

We didn't get rid of it. We tried it for over six months I believe

and decided to call it a day and consider him colonized. So now we do

28 days on of TOBI and 28 off. My doc believes he went undiagnosed

for at least a year and a half when I told him of my battles w/

Wyatt's cough while in California. His doc here in Hawaii diagnosed

him immediately when we got here. Maybe 2-3 weeks after arriving. So

don't give up hope yet, you still have a chance. I don't think we

ever did but what can you do? Christy mom of Wyatt 7wcf and Hunter

2.5wocf

What does is it mean to consider someone colonized?

age 5 and a half has been culturing PA since December of '01. The

first time she was admitted for IV treatments. Since then she has been

positive two more times. The Doctors have her on the four weeks on Toby

Four weeks off cycle. With an added Cipro for 14 days. But she still

continues to culture positive and currently has bronchitis. She finished

her cycle of Tobi two weeks ago. However the problem:

Last Thursday she was diagnosised with bronchitis and is again on Toby

for two more weeks. Monday the 18th she is scheduled for surgery to have

her feeding tube placed. If her lungs have not gotten any better the

operation will be postponed.

My question is - With P.A. and the on and off treatment using Toby and

still culturing positive. In your experiences, would you think a treatment

of IV antibiotics would work better at this point. I don't think she has

been " clean " since last December when she actually did have P.A. and was on

tobrimyocin(sp.) IV? Thanks

Steve & Louise

Grandparents to Princess 5 and a half years WCF

and Her footman, Stevie 3 years WOCF