Re: Cutured positive for PA...new to Tobi..HELP!

[Guest guest]

My son (13) test positive for PA about 4 weeks ago. He was immediately put

on Cipro and Colestin in his neb. We were told to do his asthma inhalers,

then the vest for 20minutes, then the neb for best results. He's been

extended on the Cipro for another week but just finished the neb. I always

did the treatments before school, after school, and before bed. His cough

has lessened. Hope this helps somewhat.

jo

Cutured positive for PA...new to Tobi..HELP!

> Ok I need some help here.

>

> WE had a clinic visit last week. Hh has gained 3 pounds since

> September and is now at the 50th percentile for height and weight.

> They did a culture just to check. I was feeling pretty good about

> her health...THat was a REALLY stupid thing to do..the minute I let

> my guard down something always happens! Well I called today because

> I had not heard yet and the news was not good! She has cultured PA.

> I THOUGHT she had never cultured it before (no one had told us that

> she did) but apparently almost 2 years ago she cultured for it but

> then has not again until now. Thank God that our clinic has JUST

> decided that whenever someone cultures PA they are going to try to

> erradicate it. We will be starting Cipro and Tobi both twice a day

> as soon as we can get the meds. Here are my questions: I know I can

> give the Tobi AFTER her vest treatment (which I give her albuterol

> during) but when I asked the respiratory therapist how much BEFORE

> the vest treatment can I give it to her she did not know??? I want

> to try to get the treatments about 12 hours apart and I am not sure

> that her bedtime will be the best time. (I have to currently get her

> up at 6am to do her morning routine but I wil have to add about 1/2

> hour to that now) So her 8pm bedtime may not be the best time to do

> the Tobi.

>

> I would like to do it like at 6p.m. with her vest 1 hour to 1 1/2

> hours after it. Has anyone ever been told that they can do the Tobi

> a given length of time BEFORE a vest treatment?????

>

> Also what else do I need to know about Tobi and Cipro? A friend said

> she herad that you had to be careful when to give the Adeks with

> these treatments???? The Clinic did not mention this?

>

> I am trying to focus on the fight but am really upset that she has

> PA. I hoped that we could avoid it until much later (Hannah will be

> 3 on January 11) I realize we have been very forunate so far in that

> she has not been really respiratorally involved. Her only hospital

> stay has been for Other cf problems.

>

> WE would appreciate ANY advice or words of wisdom. You can bet we

> are going to focus on making this a GREAT Christmas and then mabye we

> will find out that the meds worked and we got rid of the PA..

>

>

> Hugs to all the little ones!!!

>

> mommy to Hannah wcf and Tommy wocf/asthma

>

>

>

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> The opinions and information exchanged on this list should IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

>

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