Guest guest Posted November 13, 2002 Report Share Posted November 13, 2002 Hello everyone! Yesterday we had Wyatt's CF Clinic. He is doing terrific. I was a bit disappointed because it is our last one here in Hawaii before our big move back to California and his pulmonologist who's followed him for 3 years wasn't there. His son got sick so his assistant (replacement when he gets orders to a new place) came in for the pulmonary part. His lungs were really clear and they said he sounded terrific! (for the record, he always does, even when he's sick)The respiratory therapist really had nothing new to say either. His Pulmo doc did give me some great advice on Cepacia and asking my new hospital (LA Children's) what their Cepacia population is and what measures do they take to keep everyone safe. They didn't get his last PFT Results which I had questions on so I was a little upset with that. You would think they would have them as we did them a week ago but whatever. Saw a dietician for the first time in the three years we've been stationed here. She was useless but oh well. I've been getting lots of good info lately from Kim so who needs the dietician ha ha The GI doc said his growth chart looks awesome. His weight was only up a tad but his height really jumped. They figure his weight will catch up to the height soon. He weighs 48lbs now and I forget the height. They always give it to me in centimeters which I hate! Give me pounds and feet/inches when measuring him! We recently called in to up his enzymes from 5 w/ meals to 6 because I noticed lots of grease in his stool. He said that dosage is getting pretty high so he also put us on Zantac. Over the counter 75mg twice a day. Wyatt was stinking up the house when he pooped and he said this should help that out. He gave us the names of two GI Docs at LA CHildren's that he HIGHLY recommends so I hope they are working w/ the CF Clinic so we can get one of them. His regular doc is going to do our medical summary for transfer so hopefully Wyatt will get to say goodbye to him when we go pick that up. I'm just relieved he is staying so healthy and we're good till we get to California and get settled. Christy mom of Wyatt 7 wcf and Hunter 2.5 wocf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2002 Report Share Posted November 14, 2002 hi there, a quickie here to wish you well in this move, The clinic you are going to is a very good one also. It is funny , but these docs move around all the time for different reasons, but they do.Sooooooo, you never know which you will have once moved . Blessings to you all & I know Wyatt will continue do well. HIS MOMMY isn't changing :) LOVE & HUGS, grandmomBEV Wyatt's Clinic Visit Hello everyone! Yesterday we had Wyatt's CF Clinic. He is doing terrific. I was a bit disappointed because it is our last one here in Hawaii before our big move back to California and his pulmonologist who's followed him for 3 years wasn't there. His son got sick so his assistant (replacement when he gets orders to a new place) came in for the pulmonary part. His lungs were really clear and they said he sounded terrific! (for the record, he always does, even when he's sick)The respiratory therapist really had nothing new to say either. His Pulmo doc did give me some great advice on Cepacia and asking my new hospital (LA Children's) what their Cepacia population is and what measures do they take to keep everyone safe. They didn't get his last PFT Results which I had questions on so I was a little upset with that. You would think they would have them as we did them a week ago but whatever. Saw a dietician for the first time in the three years we've been stationed here. She was useless but oh well. I've been getting lots of good info lately from Kim so who needs the dietician ha ha The GI doc said his growth chart looks awesome. His weight was only up a tad but his height really jumped. They figure his weight will catch up to the height soon. He weighs 48lbs now and I forget the height. They always give it to me in centimeters which I hate! Give me pounds and feet/inches when measuring him! We recently called in to up his enzymes from 5 w/ meals to 6 because I noticed lots of grease in his stool. He said that dosage is getting pretty high so he also put us on Zantac. Over the counter 75mg twice a day. Wyatt was stinking up the house when he pooped and he said this should help that out. He gave us the names of two GI Docs at LA CHildren's that he HIGHLY recommends so I hope they are working w/ the CF Clinic so we can get one of them. His regular doc is going to do our medical summary for transfer so hopefully Wyatt will get to say goodbye to him when we go pick that up. I'm just relieved he is staying so healthy and we're good till we get to California and get settled. Christy mom of Wyatt 7 wcf and Hunter 2.5 wocf PLEASE do not post religious emails to the list. ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. -------------------------------------------------- Quote Link to comment Share on other sites More sharing options...
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