Re: Mel Re: Feeling overwhelmed

[Guest guest]

Dear Mel,

We kind of had a head start....without knowing it....you see we first went GF

for a few months after the diagnosis of Celiac Disease (in all of us with the

exception of adopted daughter!)....when that didn't work we went GFCF....and

when that didn't work (rice, and corn syrup put our daughter in the

hospital!)..... than we took all grain out for last spring, summer and

fall....had best success (but not like now)....last Holiday season... " fall of

the wagon " so to speak (ate gluten free starchy and sweet baked goods...guess

what....we all got sick again) that's why we are here!

It is OBVIOUS that in our family that this is much more than GLUTEN, much more

than Casein (protein in milk) and much more than just taking grain out of the

diet! BTVC is the only thing that made since (with it's explanation about

starch and sugars) so we went into this SCDIET committed.....and to help we

waited until day one....when we RAN OUT OF GROCERIES.....we had none of the

foods around to tempt us....when we went grocery shopping...we only bought intro

SCDiet foods....so the pantry was bear.....to this day it sits pretty empty.

We use our freezer and refrigerator much more. Like I said before.....we can't

tolerate the nut flours very good....so that means cookies and such are at a low

too (until we are ready for next stages)....plus since we are trying to get rid

of a Candida problem...honey is at a low too......

So....yes it is hard when they cry in hunger (but remember that it is

" addiction " not TRUE hunger/unless they are truly anorexic and not eating a

thing...especially when what they are asking for/craving is sweet!).....yes when

became hungry he ate with us all....but we did it as a family....we all

shared our good byes with one another....are pain.....it was a team (it still is

a team only on day 30)....this helped him a lot to hear his ma ma and daddy

express the same " pain " and " loss " he was feeling....At one time I held him and

we both cried our goodbyes...and ended this crying session with a " shared "

gratitude list of all the foods we can eat....and talked in depth about how we

all would feel better soon.. Is it worth it YES.... staying up nights with a

one year old having seizures, and a four year old waking up (screaming and

crying) with bone pain (due to malabsorption of the intestines not being able to

assimilate the calcium, minerals), seeing both kids legs start to bow in (like

their mother.. I had to have six surgeries to straighten undiagnosed

rickets/this is not a joke!), seeing them with dark circles under their eyes and

having all the symptoms of a toxic and starving brain......when he cried in

distress...we loved him.....but not to the point of loosing focus on our

goal....making his life better than ours...my husband and I have suffered in

ways that make some people speechless when we share.....I don't want my daughter

to loose 4 babies like we did......not to count the countless visits to doctors,

ER, hospitalizations....humiliating and painful tests.....learning

disability....not feeling grounded in reality.......and feeling different the

rest of their life .........we both do not want these things to happen to our

children. We did loose weight initially, but this has stopped....we all weigh

more than when we began! With the exception of husband who could afford to

loose....he is still loosing but he was a little over weight...all the rest of

us where too thin!

We all have to have our pity party...but have it together....don't leave him

out....or take away his ability to share with you and your feelings! Cry and

hold one another...say your goodbye....Cry....beat pillows (we did this...and it

works to let out all that pent up negative energy!). After you are done having

your " pity party " end it by making an A to Z GRATITUDE LIST with your

son......like we honesty did...when you print out the legal and illegal

list....it makes it easy.....they already have it set up A through Z! Do it

with him, HAVE FUN! But your list on the refrigerator.....maybe cutting out

pictures of the legal things too! Explain to yourself and to him that you will

feel better and more happy soon...talk about what you hope will be disappearing!

AND that thousands of testimonies are not lying to you! My son (at four years

old) now says that it is good to cry...it gets your feelings out. Plus this way

the " pity " and " feeling sorry for him " doesn't set you up to making bad choices.

Hope this helps, Sincerely and with CARE and UNDERSTANDING! Antoinette

(entire family day 30 SCD, Celiac Disease, Malabsorption Syndrome, Leaky Gut

and all the neurological problems that go with a damaged gut that causes the

body to " starve " ......ADHD, ADD, ASD, too many miscarriages, mental illness,

learning disabilities, perception problems, sensory interrogation problems,

speech problems, dyslexia, being wrongly diagnosed with anorexia and bulimia,

Irritable Bowel Syndrome, Colitis, " colic " , Rickets, Osteopenia,

Osteomalcia......easy fractured bones....bad teeth and gums (and not due to

hygiene!) ....and so much more....healing and trying to save our kids from going

through HELL like we did!......yes we have had one heck of a life!) Are adopted

daughter was diagnosed with hyperekplexia and form of cerebral palsy.....messing

around with diet last year...and now SCDIET...the neurologist can not explain

why it is disappearing! We know why don't we! You see this may be a " human "

problem...either that are we are just not lucky!

Re: Feeling overwhelmed

Not gruff at all...so basically what you're saying is you made the

chicken soup and the hamburger, jello, eggs and juice and

said...that's what you get. That and I'm having a little pity party over

here.

--Mel

For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

http://www.breakingtheviciouscycle.infohttp://www.breakingtheviciouscycle.info/\

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and

http://www.pecanbread.comhttp://www.pecanbread.com/>