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My God that is awful! Are you guys doing better? I never knew that!

Antoinette (SCD day 20 entire family)

Re: Re: Why don't more doctors/therapist understand the

gut brain connection?

Because I lived there and the entire town in a superfund site, Colorado has

quite a few ex-mining towns in the same situation, beware. The EPA said before I

moved, after abating my plot of land, that just driving around the streets of

Leadville, you are breating in lead dust, so don't even go and visit that town.

Even though declared a superfund in 1982, the EPA and town government were

content to sit on their haunches, only doing superfund clean-up of residences

after poisonning has happened. When I bought a residence up there, it was never

disclosed. It ruined the health of my family.

Summer

kikijabunce ajbunce@...> wrote:

No we never lived in Leadville Co....why do you ask?

Antoinette (SCD day 18 entire family)

We are going on day 18

tommorow. KiKi (22 months old) is doing

> better with the help of enzymes....still problems with pudding

> consistancy poop. Moving slow this time through stages....she is

> acting so much better. Laughing for the first time....so much

> happier. Still had one " night terror " like seizure last night. The

> doctor told be to wake her up a half hour before I think it will

> happen since she does it around 2:00 at night...to see if we can

> break the cycle...that leads to it. Has anybody had success doing

> this?

>

> We hope to hear more words from her...(today she would not

say " eye "

> if we made her!....she is very determined for it to be only in her

> time...and not ours) I hope that we do hear her say " no " soon.

One

> of you said that this would be a sign of true " healing " ....she

still

> just screams a lot to be understood when she protests....so much

> behavior that needs to be changed...Our son was less moody

> today...less crying....and irritable....

>

> Both kids need speach therapy/possible occupational therapy...yet

> how do you guys get a child to participate (KiKi)in therapy when

> they just close up/and LITERALY shut down with strangers??????She

> crawls into herself...and WILL NOT LEAVE MY LAP...and if you make

> her...she falls to the floor and literaly " wills " herself to sleep

> after screaming in terror! When she was evaluated last time...it

did

> not work at all...I brought home a baby/toddler that was literraly

a

> RECK...it took her THREE DAYS to recover! Even when people come

into

> the house she " shuts down " ...we use to have hopeful thinking and

> thought that she was " just " shy...but this is more than " just "

> shy......And of course....they/past doctors/therapists blamed her

> parents...thinking that there may be abuse/neglect.....or

something

> going on wrong in the home! Questioning our stress level and our

> family dynamics...even blaming the adoption of her sister who is

> five months younger.....Everybody wants someone to blame when a

> child has this ASD problem....why can't they see the TRUTH? It

> seems like most the therapists don't even get it....meaning

the " gut

> brain connection! " It took an act of congress to get someone to

> notice that it was Celiac Disease! And even at that they don't

get

> the gut brain connection...thinking that it was " just "

Gluten...when

> we all know this is hagwash after we all stayed sick eating the

> traditional gluten free diet...prescribed to all of us since we

> where confirmed as having Celiac Disease!

>

> At around ten months old when we put " gluten free " rice in her

diet

> she ended up so sick she ended upin the hospital with a bunch

> of " clueless doctors " !!!!!!! This was a wake up call for her

> mother...tell me! It was just horrible not knowing how to feed her

> or myself..or my Celiac Family.....since I was breast feeding her

I

> had to stay away from the foods that made her sick....everyone

> suggested to " wean " her (that my milk was not good enough to help

> her gain weight)...thank the lord I DID NOT LISTEN...my milk was

her

> LIFE SAVER (she literaly clung to the breast...nursing around the

> clock like a newborn it was a JOB, yet on the most part was the

only

> time she did not cry!) and La Leche League and well informed

> Lactation Consultants saved HER and her mother from this horrible

> advice! IT just so happens that cornsyrup (which is in most

> formulas) put her in the emergency room (when we gave it to her

the

> first time)...she also got sick with soy and dairy! Literaly

coming

> out of a nightmare. She use to cry around the clock! I was a

> walking zombie! I was exhausted....and sick myself!

>

> We see the DAN April 26....it seems like a year from now..I hope

> that he is understanding...It is nice to already have two doctors

> that are SCD friendly (but they are not DAN doctors)....look

forward

> to meeting Dr. Kucera (a DAN doctor that promotes SCDIET.

>

> Could Helen Danahey M.D. and Scot Lewey D.O. be put on the list of

> SCD freindly doctors? For the Colorado Springs/Colorado Area?

This

> way others can use them if they want a doctor that accepts this

diet

> plan, thanks to them seeing our family...and all the problems we

> have had with the traditional gluten free diet/casien free

> diet/paleo diet...not working all that well. Again...thank you

> Elaine! Again sorry so long...lots to share.....

>

> Antoinette

>

>

>

>

>

> For information on the Specific Carbohydrate Diet, please read the

book _Breaking the Vicious Cycle_ by Elaine Gottschall and read the

following websites:

>

http://www.breakingtheviciouscycle.infohttp://www.breakingtheviciouscycle.info/\

>

> and

> http://www.pecanbread.comhttp://www.pecanbread.com/>

>

>

>

>

>

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