Jackie is home...

[Guest guest]

Hey All,

They kept Jackie overnite and we arrived home on Thanksgiving night.

My phone line was down so I have to wait until it was back on to

post. She did not get pancreatitis. She is in alot of pain though.

But the blood work was fine. They found nothing fixable, the ducts

were all open and flowing fine. Dr Cotton said there was more

scarring in the duct that is consistent with chronic pancreatitis.

They do not recommend anything else at this time. Her new Pediatric

GI stopped in to talk...he said he agrees with pain management that

he doesn't want her on narcotics. He acted like they would not send

her home with any but then they wrote a script for 30 lortab. She

has appts with him and her pain management doc in January if she is

still in pain and they won't relieve her pain...then they are fired.

Hopefully the GI will write her scripts for her other drugs, enzymes,

prilosec, the pain management writes neurontin, anti-depressant to

help her sleep,called trazadone...she used to be on elavil. He also

writes phenagran, and Ultram for pain. I really don't care...I have

a little back up on everything cuz of her not taking meds when

hospitalized and other times of extreme pain and not eating she won't

take enzymes etc... I heard we had a pediatric GI coming here in

February...but he could be like the rest. Who knows...SO everyone

pray that the pain gets light enough that ultram, advil, tylenol can

control the pain. Well the pain going all the way away is a good

prayer too.

Well, she is still asleep this morn, had a bad night last night. She

did eat yesterday, it caused a little extra pain so I don't know if

she will eat today or go on clears. Hopefully today will be better

than yesterday. Thanks for all of your support, thoughts and

prayers. My family and I appreciate all this group is for us. I

will keep you all posted on how she is.