Guest guest Posted October 23, 2002 Report Share Posted October 23, 2002 HI,this is just the group I have been searching for. My 13 yr old daughter was diagnosed with CF last yr at this time. It has been a rollercoaster of emotions ever sense, but we try to stay positive for her. She is doing very well at the time, but was put in the hospital in March with pneumonia in both lungs. Was in there for a week, then home health came in and showed me how to do her meds myself. As of right now we are treating her for asperillas(probably ms, sorry) she is taking Sporanox and Prednisone, and doing well on that. She also has to take Ultrase MT 18 with meals and snacks, which I think is helping because she has gained 5 pounds and looking very good. I try to get a Scandi shake down her every other night, and she doesn't seem to mind the taste, as long as its with ice cream,LOL. It will be nice talking to other people that can relate, you know my friends and family have been a great support but don't really know the real affects this disease has on a child, or there parents. Margo Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.