Emma's mom and others

[Guest guest]

To all who are having such a hard time with their children,

I am sorry and really wish I had some advice. I feel awful just sitting back and

not having some kind of answer, but I guess you know our situation. We don't

know which end is up anymore.

I know how hard it is not having solid answers when your child is throwing up or

running a fever, etc. with no answers. All you can do is pray they figure it out

quickly.

, I can relate to you about Emma's sibling saying that about her sister.

Only, my son (Caden) has told me and asked me really strange things about death

and stuff. (He is 4!). How does he know this stuff and why on earth would he say

the things he does.??? Who knows... I don't dwell on it though.

I guess the only advice I can give you is to Keep on smiling and keep that

little Emma smiling.

Laughter and good spirits have been proven to boost the immune system. Believe

me, I know it's hard to laugh but you kinda can't help it when the kids say or

do something funny. Don't hold back because of the circumstance you are dealing

with. Sometimes, I catch myself not allowing myself to feel happiness, because

it feels forbidden. I feels as if I shouldn't be allowed to be happy, with Caden

having to deal with everything he does. I have learned though, that when I am

smiling, Caden is happier. He can sense the frustration and tension.

Anway, this turned out to be a session! haha

Just wanted to let everyone know that I am NOT just Selfishly here. I have

gotten much support from everyone and really appreciate it. I do care about what

everyone is dealing with and wish only the best to all.

If I don't respond to everyone's emails, it's just that I don't really have any

good advice as I am frantically looking for some myself!

Take care,

Krystena s

mom to:

Caden 4 yrs Glutaric Aciduria type II

10 yrs (half sibling) -Diabetic

Warren 7yrs- (half sibling) Not tested

I