Guest guest Posted November 27, 2002 Report Share Posted November 27, 2002 Well, We went to the CF clinic in Cleveland on Monday. Met Dr.Chmiel. Very brilliant dr.! Liked him a lot. However, we really don't know anything at this time. He said that he felt that Caden was going to be negative for CF (about 99% sure). But... he said that he could not tell us for sure that he doen't have it due to some of his symptoms. He did a throat swab. I hope he got it good enough. Caden wont let you put the stick on his tongue. So, we just did it the best he could without holding down his tongue. He did a chest x ray (which he said looked good). He also did some routine blood work. ..CBC and stuff. He also done a urine test. How could a urine test have anything to do with CF clues??? He said that the main results would be to wait on the DNA test, which still......aren't in! They were supposed to be called in on Monday. Not there yet. So, yes, we are still waiting. He also told me about the horrible comlications from the over use of antibiotics (providing you are not dealing with CF). He was talking about typical viral/respiratory infections VS a true bacterial infection. He did say that it would be a good idea to go ahead and go to the ENT when the allergist sends him. He said that a polyp can actually be anything raised up in the nose, not necessarily a polyp. Heck, it could be a tumor (highly unlikely). or it could be something totally benign. The only way to know is to look at it (per ENT). I emailed Ambry just now. They are going to ban me from emailing! haha but.... every time I get a response they always tell me a date it will be ready and then when it's not there they say something happened they had to redo part of the test... Caden's ped. isn't even in today so, even if it is called in today, we won't get results and they are probably out the rest of the week. Well, just wanted to touch base in case you were wondering what we found out. Caden is doing much better. Still on Cefzil. He is still stopped up, but he can breathe better at times. The dr also said that it looked like his left nasal passage way was very small so, maybe that's a contributing factor in his mucus clogging up. Well, thanks for listening and I will write as soon as I hear something. Krystena s Caden 4 yrs GAII testing for CFc Quote Link to comment Share on other sites More sharing options...
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