Guest guest Posted March 8, 2006 Report Share Posted March 8, 2006 Hi everyone, I've been on the scd for almost a month without any cheating at all & I'm trying to pay strict attention to hidden ingredients, etc. Well, yesterday at noon I had A bite - only one - of a peice of cheese pizza and my daughter was up all night last night and this morning has those tell-tale red bumps under her eye this morning! I really don't have to ask but I will anyway . . . is this because of that one bite????? Now I feel awful! ~Terri scd 1mo. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2006 Report Share Posted March 11, 2006 > > Summer, you are very sweet and awfully generous! I can't tell you > how much your offer means. Unfortunately we're on the other side of > the country - Virginia. > > After a brief lay-down, I've just decided to call it a night and > give him leftovers from today's foods (which are supposed to be > rotated out) for breakfast, and finish chopping the beets and > brussels sprouts in the morning. I'll be up too early to start > running tomorrow's errands right away in the morning. Sleep is more > important at the moment. Sometimes you just gotta find a shortcut. > Suzanne > I call my shortcut " Cusinart " :-) Carol F. SCD 6 years, celiac Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2006 Report Share Posted March 11, 2006 > > Summer, you are very sweet and awfully generous! I can't tell you > how much your offer means. Unfortunately we're on the other side of > the country - Virginia. > > After a brief lay-down, I've just decided to call it a night and > give him leftovers from today's foods (which are supposed to be > rotated out) for breakfast, and finish chopping the beets and > brussels sprouts in the morning. I'll be up too early to start > running tomorrow's errands right away in the morning. Sleep is more > important at the moment. Sometimes you just gotta find a shortcut. > Suzanne > I call my shortcut " Cusinart " :-) Carol F. SCD 6 years, celiac Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2006 Report Share Posted March 11, 2006 Boy, it sure would be great if that were an option. We could use the help. Hiring someone is out of the question. We're paying $60,000 a year for Tom's ABA therapy, and I just lost my job. Our old friends don't understand our life AT ALL and we rarely see them. We've asked for help from our family and they just think we're complaining. Our new friends, the ones who get it, are parents of autistic kids of their own, and of course they already have their hands full. We live in a state that provides no respite care funding. I wish it were easy to get help, but we sure have tried in the past and we've never found any. Suzanne > > " Convenience food " deserves a better name. How about " saving mommy > > from the loony bin " food? > > > > Off to cook, > > Suzanne > > > Suzanne, > I am going to just run the idea by you once more of hiring someone or enlisting a friend > for a day to prepare food in advance that can be portion packed in Ziploc type containers > and frozen. > > Assuming there was more convenience food, there couldn't be enough to address all your > needs. A helper can make your favorite SCD recipes and baked goods that freeze well. > > Spending hours cooking must be daunting for you under the circumstances. If you find the > diet is working, it will get easier and be worth it. > > I don';t sleep well and sympathize with what a nightmare to also have a husband and > children to look after that need plenty of extra attention. > > Carol F. > SCD, 6 years celiac > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2006 Report Share Posted March 11, 2006 Suzanne, don't mind me for saying this, but $60,000, that's extortion! For this money, you could be going to school to become an ABA specialist! I swear it, having a diagnosis of autism basically waves red flags in the medical/therapist community to stick it to you. I have found one thing to be true, when friends do not understand another friend's hard times, they are only a fair weather friend. I am a mom of two children recovering with autism, one more severely, one ASD, we fly alone with absolutely no help from family. It is a pretty rotten deal, unfortunately, and one which, to this day, I still do not understand. Our parting of ways was because we started down the diet approach instead of tranquilizers. Even though now I have two children who are finally able to speak, who never could/would with other therapies, we are still doing the " wrong " thing. Before we started having progress, we were doing the " wrong " thing. Hunter a couple of years ago once tore out every single plant in my garden, all my tomatoes, everything, my MIL came over and was disgusted with me. *sigh* I owe my children all that I can do for them, not other people who do not have an inkling about autism, or enough compassion to offer help. They always tell you in the hospital, being a new mother, sometimes when you need help you just have to ask for it...from family, friends and neighbors. Why this doesn't apply to autism is beyond me. What city do you live in? I am wondering if you have a local ARC, they are a non-profit that serves the communities of developmentally and physically disabled, also offering respite care and other services. Have you thought about moving some place with more local support? I live in WA, there are many therapy options, available through Oregon Health Science University (OHSU) and many other places. They will work with you on a sliding scale. When we lived in Oregon, when I had Hunter in the public school system, they were offering therapy for free, for those children who could not be serviced through the schools. I am just listing ideas for you. The other idea would be to do ABA therapy yourself, overseen by a specialist. My son Hunter a few years ago, was doing so poorly in school. I went with him to school every day, I was there every minute. Plus I love to read and research. I absorbed everything the school and therapists were doing, I learned more about it, pulled him out and started doing it myself. I am not saying this is appopriate for you or anyone else, I am just saying this is how I did it. Anyway, healing Tom's gut is the foremost important thing. It will make all the therapy more effective. Is Tom taking digestive enzymes? Another resource: www.freecycle.org Go there, and sign up for the page for your local community. Freecycle is about community pulling together and keeping reusable items out of the landfill. It is completely free. You can post items you no longer want, or you can post want ads for items you are looking for. The strength of your freecycle will depend on your community. I recently received a free piano from mine, by a non-profit. But the thing is, you can look for and post " wanteds " for things you need and are unable to buy. I got a perfect, nearly new food processor from my freecycle. Other scores this year...A whole matching set of dishes, a lazy susan, all sorts of things that made our lives and cooking SCD easier, without taxing the budget. I see blenders, food processors, ice cream makers, food dehydrators, all kinds of things come up. I am thinking that I eventually want to start a local SCD Autism Support Group here in Vancouver, to help get people started SCD and over the initial humps. As soon as I find other SCDers up here that are interested, I am going to do it. Maybe others would be interested in starting these in their communities? SCD is really rough in the beginning, but things will get easier over time, as that little gut heals. Just remember, this is possible, this is not going to last forever, there is no race, no competition, healing happens over time. Have faith that your son is going to heal and get better, without attaching to the result. Some friends of mine recently formed a woman's group called the " Yagga Gagga Sisterhood " . The whole idea is that we take one day a week or every other week, and we all pick a one of our families that really needs help, and come over, do the housework, the gardening, the cooking, the babysitting, etc. If us parents do not have some outlet for rest, relaxation and community, all of us get burned out and there is little left to give to anyone. I'll let you know how this goes when it gets into full swing. I really wish I could just grab you through this computer, hug you, and put you to bed and give you a break! Summer Suzanne szmidford@...> wrote: Boy, it sure would be great if that were an option. We could use the help. Hiring someone is out of the question. We're paying $60,000 a year for Tom's ABA therapy, and I just lost my job. Our old friends don't understand our life AT ALL and we rarely see them. We've asked for help from our family and they just think we're complaining. Our new friends, the ones who get it, are parents of autistic kids of their own, and of course they already have their hands full. We live in a state that provides no respite care funding. I wish it were easy to get help, but we sure have tried in the past and we've never found any. Suzanne > > " Convenience food " deserves a better name. How about " saving mommy > > from the loony bin " food? > > > > Off to cook, > > Suzanne > > > Suzanne, > I am going to just run the idea by you once more of hiring someone or enlisting a friend > for a day to prepare food in advance that can be portion packed in Ziploc type containers > and frozen. > > Assuming there was more convenience food, there couldn't be enough to address all your > needs. A helper can make your favorite SCD recipes and baked goods that freeze well. > > Spending hours cooking must be daunting for you under the circumstances. If you find the > diet is working, it will get easier and be worth it. > > I don';t sleep well and sympathize with what a nightmare to also have a husband and > children to look after that need plenty of extra attention. > > Carol F. > SCD, 6 years celiac > For information on the Specific Carbohydrate Diet, please read the book _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following websites: http://www.breakingtheviciouscycle.info and http://www.pecanbread.com Quote Link to comment Share on other sites More sharing options...
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