Guest guest Posted October 29, 2002 Report Share Posted October 29, 2002 Ggenerally they just increase the enzyme ##, ex. From mt-4 to mt-10, etc. That will have to be done with the DOC's direction. This is one of those things that is best done thru clinic. Best wishes on this. LOVE & HUGS, grandmomBEV lipase supplement Hi everyone. Yes, we are STILL waiting for the GI dr to call. I called yesterday but didnt get a return call. (as suspected). We were suposed to have results by Wednesday or Thursday (last week). Anway, I was wondering what enzyme is used for Lipase deficiency? Caden's fecal fat study and lipase level actually confirm one another. Lipase is low and fecal fat was high. I am ASSUMING that he will surely get an enzyme to supplement his lipase deficiency. He is malabsorbing his fat. He is losing around 30% of his daily intake of fat. Is there many side effects to a lipase supplement? (i.e., belly ache, etc) Thanks, Krystena s mom to: Caden 4 yrs Glutaric Aciduria type II (testing for CF) 10 yrs (half sibling) -Diabetic Warren 7yrs- (half sibling) Not tested PLEASE do not post religious emails to the list. ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. -------------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2002 Report Share Posted October 29, 2002 Ggenerally they just increase the enzyme ##, ex. From mt-4 to mt-10, etc. That will have to be done with the DOC's direction. This is one of those things that is best done thru clinic. Best wishes on this. LOVE & HUGS, grandmomBEV lipase supplement Hi everyone. Yes, we are STILL waiting for the GI dr to call. I called yesterday but didnt get a return call. (as suspected). We were suposed to have results by Wednesday or Thursday (last week). Anway, I was wondering what enzyme is used for Lipase deficiency? Caden's fecal fat study and lipase level actually confirm one another. Lipase is low and fecal fat was high. I am ASSUMING that he will surely get an enzyme to supplement his lipase deficiency. He is malabsorbing his fat. He is losing around 30% of his daily intake of fat. Is there many side effects to a lipase supplement? (i.e., belly ache, etc) Thanks, Krystena s mom to: Caden 4 yrs Glutaric Aciduria type II (testing for CF) 10 yrs (half sibling) -Diabetic Warren 7yrs- (half sibling) Not tested PLEASE do not post religious emails to the list. ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. -------------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2002 Report Share Posted October 29, 2002 Ggenerally they just increase the enzyme ##, ex. From mt-4 to mt-10, etc. That will have to be done with the DOC's direction. This is one of those things that is best done thru clinic. Best wishes on this. LOVE & HUGS, grandmomBEV lipase supplement Hi everyone. Yes, we are STILL waiting for the GI dr to call. I called yesterday but didnt get a return call. (as suspected). We were suposed to have results by Wednesday or Thursday (last week). Anway, I was wondering what enzyme is used for Lipase deficiency? Caden's fecal fat study and lipase level actually confirm one another. Lipase is low and fecal fat was high. I am ASSUMING that he will surely get an enzyme to supplement his lipase deficiency. He is malabsorbing his fat. He is losing around 30% of his daily intake of fat. Is there many side effects to a lipase supplement? (i.e., belly ache, etc) Thanks, Krystena s mom to: Caden 4 yrs Glutaric Aciduria type II (testing for CF) 10 yrs (half sibling) -Diabetic Warren 7yrs- (half sibling) Not tested PLEASE do not post religious emails to the list. ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. -------------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2002 Report Share Posted October 29, 2002 Krystena, From what I understand they will give him a pancreatic enzyme supplement that contains lipase, amylase and protease -- typical CF stuff. There are few side effects, mostly good ones -- no more fat malabsorption. Sometimes there is a little trial and error with dosages and brands before the best results are achieved. Here's hoping for the results, SOON! )O( mama to , 2yo, wCF and alpha-1 and to , 4 yo, w/alpha-1 but no CF Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2002 Report Share Posted October 29, 2002 Krystena, From what I understand they will give him a pancreatic enzyme supplement that contains lipase, amylase and protease -- typical CF stuff. There are few side effects, mostly good ones -- no more fat malabsorption. Sometimes there is a little trial and error with dosages and brands before the best results are achieved. Here's hoping for the results, SOON! )O( mama to , 2yo, wCF and alpha-1 and to , 4 yo, w/alpha-1 but no CF Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2002 Report Share Posted October 29, 2002 Krystena, From what I understand they will give him a pancreatic enzyme supplement that contains lipase, amylase and protease -- typical CF stuff. There are few side effects, mostly good ones -- no more fat malabsorption. Sometimes there is a little trial and error with dosages and brands before the best results are achieved. Here's hoping for the results, SOON! )O( mama to , 2yo, wCF and alpha-1 and to , 4 yo, w/alpha-1 but no CF Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2002 Report Share Posted October 29, 2002 Hi Krystena, there is no special enzyme for lipase deficiency. CF-patients are lipase-deficient too and that's why they take enzymes. It is my understanding that amylase and protease (the other two ingredients of what is simply called " enzymes " here) are produced in the stomach and bowel too while lipase is only (or almost only) produced in the pancreas. Hence all pwcf are mostly lipase deficient. They don't need amylase and it's not clear whether they need additional protease. But since it is too expensive to seperate the different enzymes and since the amylase and protease in the pancreatin (that's the generic name of the stuff) doesn't hurt, enzymes consist of a mixture of all three different enzymes. But it's the lipase that counts and that's why the lipase content of the enzyme determines the strength (e.g. there are 10,000 lipase units in a Creon10). Everything clear as mud now? :-)) Unfortunately Caden's lipase deficiency is another step into the unwanted direction of getting closer to a dx with CF. Peace Torsten, dad of Fiona 5wcf e-mail: torstenkrafft@... Quote Link to comment Share on other sites More sharing options...
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