We're home

[Guest guest]

Hi everyone.

We are home earlier than expected. We actually only stayed one night. Glad but,

are kinda aggravated.

We are having to wait on his NG tube feeds until we get the results of his

biopsies from his endoscopy. Which is fine.

Caden's sweat test was normal at 23 and the GI dr said that it TOTALLY ruled out

CF. Is this true? I have read otherwise.

He still has the sinus infection! Well, they did sinus xrays but didn't hear

about how they turned out.

I am calling his ped today for a referral to an ENT. One of his nostrils is

almost completely blocked from getting any air due to his swollen 'thing " . His

ped said it's not adenoids. I thought it was his adenoid from having an

infection. She says adenoids are way back in the head. I forgot what she called

it. Anyway, he cant breathe for it and has thick yellowish looking discharge

from his nose. He is on 600MG twice a day, of Augmentin! (his 3rd antibiotic).

His GI dr was really worried about CF until his sweat test came back normal.

Should I be relieved? Do you think his sinuses just may be totally unrelated to

his digestive problems?

Should I ask the ENT for a CF work up when we go?

Is DNA best? I just want to be 100% relieved. If a sweat test was 100%

diagnostic, I would be satisfied. Even the resident who took care of Caden in

the hospital, thought all of his symptoms had to be caused from CF!

Well, we have to wait until the middle of next week for biopsy reports and by

this Friday we may have some results from his pancreatic enzymes and such. They

gave him something to empty his liver and gall bladder (I think gall bladder) to

check the enzymes in there. Looking at how he breaks down fats, proteins, and

carbohydrates, etc..

His fecal fat study still isn't back either.

Well, thanks for listening. Please let me know what you think!

Krystena s

mom to:

Caden 4 yrs Glutaric Aciduria type II

10 yrs (half sibling) -Diabetic

Warren 7yrs- (half sibling) Not tested