Re: SO CONFUSED PLEASE HELP !!!

October 16, 2002

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Crystal,

What did you ever find out about your son's delta testing?

I guess you guys can see I am reading old emails!ha ha

Krystena

- In cfparents@y..., Tysidtan2@a... wrote:

> Hey Hope this finds everyone doing the best they can be ! Some of

you may

> remember last week I posted about my 6yr old having to be tested

for cf (I

> have an 8yr w CF and my 6yr old's twin passed from cf) anyway... I

was told

> test was neg.(sweat test) Today we go to a new doc (Ped.

Gastrologist )for

> stomach probs and here we go again...He is a retired CF doc and

asked me to

> go to have Sidney tested again because he thinks my son has

Variance CF. He

> told me that with Variance CF that even if my son was tested 100

times every

> sweat test would come back NEG. Unless you looked for a certain

mutation

> which is done by blood work CF could not be confirmed . We had a

delta 508

> test which will take a week to find out !!

> I am on a rollercoaster here !

> We thought he had it! The test said he didn't ! Now we are back to

does he

> have it ? PLEASE HELP !! Has anyone ever heard of this ? Thanks ,

Crystal

>

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