I'm shaking my head as to what subject to call this!

[Guest guest]

Hi All,

I just have to let out my feelings again regarding my son's diagnosis. Can any

of you out there give me your story? Did you think in the beginning it was a

mistake? Maybe like me, your child didn't present with any problems/symptoms?

My mother keeps telling me that I should be happy and grateful. I know that but

its just so hard to accept when he is doing so well. Can they ever make a

mistake? Is that so wrong of me to hope for that? I still continue with

everything I have to do, meds, enzymes, therapy, etc. Maybe that is why he is

doing so well.

These past 9 months still feel like a nightmare that I am waiting to wake up

from. Unfortunately, I've been awake the whole darn time!!!

I have stopped nursing, it has been almost a month now. Do you think that might

make him start presenting with some symptoms? He is on whole milk, and has had

no problems.

Sorry for my emotions, just can't seem to get my head around all this.

Any advice, comments etc. are appreciated.

Cheryl, mom to 3 boys, Zac 6 yrs. wocf, Jake 2 yrs. wocf, Matty 9 mo. wcf