RE: BLRUFF

[Guest guest]

Welcome to this group you'll find a lot of knowledge on day to day stuff

here. We have lots of family get togethers and for the last 12 years we

have had every x-mas,birthday,Easter etc. at our house. If someone is

ill they know not to come, and if they do then they are asked to leave.

I'm glad to say this has only happened once to a distant relative. All

our family know. I have friends who make their kids cough over the

phone to me to see what sort of cough they haveLOL. I wouldn't live in

fear about hosting get togethers. As long as everyone knows the rules,

then life is normal. Not normal like it was but normal like it is now.

I have a 8 year old who doesn't ever want to be ill, but he likes having

physio done on him now and again. So when he asks can he have a turn we

let him.

Where are you from?

(Australia)

mummy to Liam 8 wocf & Eilish 5 wcf

Relatives and healthy kids

I am brand new to CF parents - Our daughter Eleanor was diagnosed a

week after her birth - she was born with a strangulated, perforated

bowel, a long, horrific story..... but she's doing incredibly well

now, (she's nearly a year old) and I am so thankful! I am also so

thankful that my two older children tested negative ...

My questions for the veterans out there center around the rest of the

family.

1) Do you get together with extended family at Christmas, etc? -

Everyone has kids, and it seems as if someone is always sick... We

have been asked by relatives a few times to host either Thanksgiving

or Christmas this year, and it scares me to death. This year we've

asked that someone else host the holidays, so that if someone is

sick - we would be the ones to stay home, rather than being put in

the position of asking someone who is sick not to come. I've

heard " through the grapevine " that some think we are overreacting to

this illness, and maybe we are. On the hand, last year, even taking

every precaution we could think of, Eleanor caught RSV @ 3 months of

age- and watching that tiny little baby cough just ripped my heart

out. - How do you handle this?

2) How do you deal with a healthy, older child that " wants " to be

sick. My 6 yr old daughter almost " wishes " to be sick. Her

4 yr old brother doesn't have CF, but he gets a really bad case of

croup every few weeks during the winter, and has been doing this

since he was 18 months old, and of course her baby sister has CF. So

far I have played along to a limited extent, giving her some extra

attention, taking her temperature, etc. Does anyone else see

this?