Tom-Welcome-?Marine Lipids for UC/CD

[Guest guest]

Hi Tom,

I am new to SCD and know more about UC than CD, but thought the

following might help. My husband has had UC since 88 and was

hospitalized at that time and before the docs figured out what was

going on he was almost beyond hope. He remained hospitalzed for

weeks and then came home and limped along barely functional for

1 1/2 years with the standard UC treatment of steroids and

azulfidine. I dragged him to a nutritionally minded MD in NY who

recommended marine lipids. We were told that in cases of

inflammatory bowel disease the marine lipids can act as a powerful

antiinflammatory. My husband started taking SuperEPA as part of a

broad spectrum nutrient program and within one week to 10 days his

hair stopped falling out and he was not sleeping all day and night.

After a number of weeks he did not have to eat as much to keep his

weight up, nor drink as much to stay hydrated and the constant

spasming and pain in the rectum began to subside.

My point here is that even though he was on a strict diet excluding

all the foods he was told, taking steroids and sulfa, it was not

enough. With the addition of the marine lipids and a rounded

nutrient program the inflammation in his gut decreased dramatically

and over a course of months he was back on his feet and functional

again. After a year and a half of absolute misery, it was not a

conicidence that he started improving. The marine lipids were a

miracle for us. (didn't know about SCD then) Isn't fistula

formation due to constant inflammation? I've no idea if EPA would

be helpful to you or not, but it would certainly be worth a try and

very inexpensive. Perhaps you already take marines, but I did not

want to assume so.

All the Best,

Gladioli-IBS 25years, Husband UC 18years SCD 1month

> >

> > Hello everyone,

> >

> > My name is Tom Coburn.

> > I've bad CD over 9 years now, and I run a discussion forum called

> > http://www.crohnsdaily.com where I give SCD and Crohn's Support

> >

> > Anyway, I've been on SCD for 3 years now, at one time I had

symtoms pretty

> > much from the throat on down, all my symtoms went away after the

first 6

> > months or so on SCD,

> >

> > but then a year into SCD, a Fistula suddenly appeared out

of " nowhere "

> >

> > trying to get it to go away for the last 2 years has been really

trying..

> > 3 years now, and the Fistulas have now spread. I now have 3

external, and 1

> > internal Fistula. At first they looked like hemaroids, this

internal one

> > is hard to desribe,

> > its umm, like a " hole " inside the rectal cavity somewhere, so

as BM passes

> > down thru the upper rectum, (its like a " leak " I guess would

be the best

> > way to describe it, a rectal leak) it " leaks " into both butt

cheeks after

> > every BM, so then I keep having surgery to drain the stuff out,

but then it

> > fills back up again and they have to " poke " it with a needle.

Finally, they

> > put a " seeton wire " in there until they can fix the Leak.

> > THey tried to fix the Leak surgically by doing a procedure

called a " Flap "

> > (where they try to graf some skin over the hole to stop the

leak) but it

> > didn't work, so now there trying " Remicade " hoping that'll

close up the

> > Leak.

> >

> > I've had 2 Remicade infusions so far, and don't notice any

difference so

> > far, but it could be too early to tell who knows.. The

infusions are

> > $9,000 a shot! and my insurance covers maybe 80% of it, but

thats it, so I

> > owe the hospital 80% of $9,000 + the $1,500 hospital bill on top

of that,

> > for the last 2 infusions, which I have no clue at all how I'm

going to pay

> > for, but i don't know what else to do to stop this leak

> >

> > its painful beyond belief, you guys just can't immagine I've

been

> > fussing with it for 2 years now, some days spending

literally " days " in the

> > bathtub crying until the pain goes away, and at the same time

trying to have

> > enouch courage to stand up for 8 hours at work without screaming

at the top

> > of my lungs every day... Been dealing with this for 2 years now,

> >

> > and I swear, I will try anything right now, I don't care what,

to get this

> > leak to go away its worse then any pain I've ever

experienced in my

> > life, worse then the Cathetor, worse then the tube up the nose

without

> > novacane, its just beyond what I thought any human can

tollerate pain wise,

> >

> >

> > if nothing else, I could really use some prayer right about

now. I just

> > want to leak to close please

> >

> > take care,

> >

> > Tom Coburn (bubazoo)

> > CD 9 years

> > SCD 3 years

> > webmaster: http://www.crohnsdaily.com

> >

> >

> >