Re: Questions on Vit E

[Guest guest]

Dear ,

Thank you for writing to me and for all the posts that you have

taken the time to write here on the list. I did find your posts

today very informative and helpful. I also appreciate that you must

be extremely busy being not just an MD, but a mom too! I truly hope

I did not sound critical and I apologize for being so persistent but

your being a mom of an apraxic child I'm sure you would understand

my drive in being so.

I know I'm asking a lot but if you can, could you tell me what your

thoughts are on a child that can not take more than one Pro-EFA

daily without strong negative behavior occurring? Nick is almost

5.6 years of age and presents only with speech issues (at this

time!). Less articulation problems at this point than a gigantic

word retrieval problem and sentence formation issues. If you were

his mom would you try the higher doses of Vit E despite his not

presenting with low tone and the other deficiency symptoms? Plus

his continuing inability to take higher doses of EFA/EPAs? Would

there be tests that you would run? I've run hair and urine with

confusing results. I'm feeling stuck and greatly appreciate any

impressions that you and any others might have.

I want to help my son in any way I can and I can't thank you enough

for taking time out of your already busy schedule. It is a true act

of kindness to reach out to strangers and share your knowledge and

experience.

All the best,

McCann

>

> Dear ,

>

> I was out of town for a week...its taken days to catch up on

email,

> and you can imagine in addition, how many new messages have posted

> on this site. I almost missed this one. Anyway, hopefully some of

my

> posts today will answer your questions. You will not find

anything

> to read on vitamin E and apraxia, because there is no data. This

is

> a totally new observation...and now a growing case series of

apraxic

> children who are doing better on vitamin E plus fish oil. But if

> you google " Merck manual and vitamin E deficiency " , you will see a

> nice table of symptoms of vitamin E deficiency. The symptoms

overlap

> those of apraxia/dyspraxia and SID. This is the table that nearly

> gave me a coronary back in July, when I first started to look for

> info on vitamin E after ph surged when switched to omega 3

> capsules from liquid, only to start to regress again several days

> after switching back to the liquid. The only difference in the

> liquid and capsules was the vitamin E, and on the high doses of

> omega we are using...he was getting only 100 IU extra E a day for

> about a week, and we saw some amazing and obvious changes that I

> needed to try to explain. So improvement was seen even with small

> addition of vit E, but when I started to supplement him with

higher

> doses, that is when we began our road to recovery. But it was

> reading the Merck manual website that made me suspect that a

vitamin

> E deficiency might be playing a role in apraxia...at least in my

> son's case...a discovery that has changed our lives. -

>

>

>

>