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Update on Leila

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I really appreciate all the kind messages the group has sent. It seems like

we're doing okay. Our doc thinks she just has a bad cold. He listened to her

chest and said he thought all the noise was mostly upper airway congestion. To

be sure he got a chest x-ray and it looked good. He also sent a swab out to see

what she's growing. We'll continue the Septra and treatments and hope nothing

else grows in the meantime. Torsten, you're right about the first illness being

scary. My first born never ever sounded this bad, plus I'm am really scared

about what could happen. I suppose I'm going to have to relax a little because

this won't be the last time she gets ill! After hearing all of your stories

about late diagnosis I am grateful we got our diagnosis so early (at birth with

meconium ileus). Does life with these kids ever stop being scary?

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