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To: theresa, Re: Jackie

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Hi, sorry to hear about all the pain med pandemonium. Let me tell

you that it is ok to 'step on toes' if shes not getting any pain

relief. I have taken a mishmosh of pain meds myself and everyone

has their favorite. With a bad attack I get 125 mg of demerol every

2 to 3 hours until the pain gets under control and then they back it

off to 100 every 3 or 75 every 2 to 3 depending on the on-call

physician. I have had all the others and found out some interesting

details about certain pain meds. Let me tell you first that most of

the pain meds except demerol are what they call clean drugs which

means they go in and are used up very quickly by the body with very

little lasting effect. I was told by many doctors that morphine is

a no no for pancreas patients because it can cause the sphincter of

oddi to spasm and create more pain or prolong an attack. Demerol if

taken on a regular basis stores in the central nervous system and

they have to be careful about the dosage so that it doesnt become

toxic. oxycontin and phentanyl can make you lose time and feel like

your out of control. I have also had the same reaction to reglan-

nervousness and jittery. Might want to suggest dilaudad. I

unfortunately can only receive demerol where I live (several

allergic reactions to most other pain meds) but I have had the

dilaudad in Chicago and found it to work better than the demerol.

Hope this helps and dont be worried about upsetting the doctors and

nurses. I know first hand. they are in the service of you and not

the other way around.

hang in there

Dennis

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