Re:Battle Royal / Blind faith

[Guest guest]

Kim,

I can understand where you are coming from regarding making your own

choices in treating your own son. But there are those of use that

arent as informed as you may be so we, or mabe I have to put my faith

somewhere. If I question a procedure or the need for a medication. I

ask. I ask both my doctors and everyone I know that has experience

with CF. Up until recently my resources have been limited. I know

that not everyone has been satisfied with the doctors that they deal

with. I've heard a lot of horror stories both here and on Cystic-L.

But I trust my sons doctor. She follows a lot of these kid's from

birth. And I know she treats them as if they were her own children.

I've seen this lady cry because she had to tell a teenager that she

treats that he could no longer play soccer because it was taking too

much of a toll on his body. She cried not because his life was over,

but because one of his dreams was. This is not a woman doing what is

necessary to cover her butt. This is a woman with compassion and

understanding. Not just for my childs physical needs, but for his

emotional needs as well. She asks questions about his personal life,

remembers his interests, and never fails to make him feel like a

friend, rather than a paitent. I know not everyone is as fortunate as

we are.

Hopefully after I have dealt with CF as long as some of you have I

will trust my own judgement. But until then, I have to put my faith

somewhere. I would fall apart without it. Thank God I have such a

worthy person to protect it.