Re: Re: Battle RoyalSHANNA,DIANA-KIM'sresponse

[Guest guest]

That was an incredible e-mail! I read every word and got so much out of it.

The one thing I have been learning about life with a Chronic Illness is

Flexiblity. It is so important. As much as a believe in routine I believe

in being flexible. If their is a dance, soccer game, etc. we adjust our meds

accordingly.

Question everything you don't understand - it doesn't make you look stupid.

When my CF Dr. retired he gave me wonderful compliments that I will take to

my grave on what a wonderful job I am doing. Since my husband tells me often

and loudly what a terrible mother I am. I realized I have to trust myself

and my instincts - I knew something was wrong with for 5 yrs. before

she was diagnosed. Now I am concerned cause I know she isn't right and it

scares the hell out of me. She has been coughing a LOT at night and wakes

looking so tired. She is coughing her average amt. during the day and brings

up a lot - but she always does.

I hate chronic life. I hate worrying........

Rosemary in New York with 3 children with CF - they are 12, 10, 6...I coined

the phrase " BREATHE DAMMIT " ; and now we have a dog named - are you ready for

this - TOBI after their medication!