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My Husband is Clubbing it

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By the way Brad's ( My husband who has CF) in the hospital....they finally

admitted him.HE should have been admitted month ago but we'll not go

there.He went from a lung function of 73% to 54% and lost 10 pounds...looks

sooo tiny right now.Plus he was running a 101 fever.UNC Pulmonary STOPPED all

direct admits.You either go to the ER or you wait until clinic day. He had an

appt in CF clinic last week and we knew he needed to go in but the ice storm

happened and so he had to wait another week to see the

doc....GRRRRRRRRRRrrrrrrrrrrrrrrrr

UGHHHHHHHHHHhhhhhhhhhhhhhhhhh...then he couldn't get a PICC LINE b/c they

don't put PICC 's in on the weekends or after 3pm on Friday. It took them 12

hours to finally clean the room ! ! ! ! We waited for 2 hours b/c I told him

NOT to go there when they told him too. I am so glad I have a new doc...I

HATE that hospital ! ! !

So now he's getting Vancomycin and its literally eating up his veins....he

had just a regular IV in right now until Monday when the IV team comes to put

a PICC in. THis is not good b/c BRAD hates needles and is totally and

completely allergic to any type of pain....=)

Need I say...I love my port.

His IV infiltrated and the ceftaz was leaking under his skin and it got super

red and he got hives up and down that arm .....Things better change there b/c

they are ticking off a bunch of people.It was good though to see the

therapists and nurses who have taken care of me through the years. They knew

after the last admission in Sept there I wouldn't be back. I kinda miss

them....not the doctors though. The care I get at Wake in better. I am their

youngest patient and their only Cf so they think Im the neatest thing since

peanut butter and jelly was invented....They make me food so I'll eat and sit

with me for hours and talk.Plus they sneak me in their offices to use the

computer.

Anyways....Bradley is in the hospital and I know he would love some

cards....he gets jealose I have so many friends.

His addy is :

Bradley Snyder

UNC HOSPITALS

Patient Room 6302

Chapel Hill, NC 27599

Becki

YOUR FAVORITE LilGooberGirl

YOUNGLUNG EMAIL SUPPORT LIST

www.topica.com/lists/younglung

Pediatric Interstitial Lung Disease Society

http://groups.yahoo.com/group/InterstitialLung_Kids/

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